护理人员对早期自闭症评估中心系统满意度的混合方法分析。

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient Experience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI:10.1177/23743735241305531
Ann Marie Martin, Jordan Huskins, Angela Paxton, Amira Nafiseh, Mary R Ciccarelli, Brandon Keehn, Rebecca McNally Keehn
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引用次数: 0

摘要

基于社区的自闭症评估方法可能是改善诊断延迟的一种解决方案,这种延迟对于来自少数民族背景的儿童来说是加剧的。然而,有限的研究已经用基于社区的自闭症评估模型检验了照顾者的满意度。因此,我们的目标是使用混合方法来调查护理者对他们孩子的自闭症评估的满意度,该评估是在全州范围内的初级保健自闭症诊断系统中进行的。结果显示整体满意度较高,且满意度总分、照顾者压力与任何儿童/家庭人口统计变量之间无显著差异。满意度和压力也与自闭症诊断结果、临床医生诊断的确定性或诊断的准确性无关。改进评价的定性建议包括更全面的诊断解释和服务建议。总体而言,我们的研究结果表明,在初级保健环境中,照顾者对社区自闭症评估的多个维度都有很高的满意度,这表明这可能是一个可行的、可持续的模式,照顾者可以接受。
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Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System.

Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable.

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来源期刊
Journal of Patient Experience
Journal of Patient Experience HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.00
自引率
6.70%
发文量
178
审稿时长
15 weeks
期刊最新文献
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