癌症谈话:病人叙述的语言和主题分析。

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient Experience Pub Date : 2024-12-23 eCollection Date: 2024-01-01 DOI:10.1177/23743735241309472
Ad A Kaptein, Pim B van der Meer, Fleur L Fisher, Hanneke W M van Laarhoven, James W Pennebaker, Ad J J M Vingerhoets
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引用次数: 0

摘要

为了通过叙事来探索癌症患者的“生活经历”,我们在患者家中——“在厨房的餐桌上”——对20名患者进行了深入采访。访谈录音,转录,并根据语言调查和字数统计(LIWC)方法进行分析。主位分析法用于探讨叙事中的主题。将20名患者的相关LIWC维度得分与未患癌症的受访者的标准数据进行比较。癌症患者在“愤怒”和“悲伤”(心理过程维度)上得分较高;在“洞察力”、“原因”和“试探性”(认知过程维度)上较低;在“宗教”这一项上要低一些。从主题分析中确定的主要主题是恢复力、疲劳、社会关系、心理内向、共同决策和心理支持。癌症患者的叙述是癌症患者如何理解自己的疾病、医疗管理及其心理和社会后果的丰富数据来源。数据分析的定性方法(LIWC;主题分析)是探索患者体验的方法论中非常有价值的元素。
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Talking Cancer-Cancer Talking: A Linguistic and Thematic Analysis of Patient Narratives.

To explore "the lived experience" of patients with cancer through narratives, in-depth interviews with 20 patients were conducted in the patients' homes-"at the kitchen table." Interviews were audio-recorded, transcribed, and analyzed following the Linguistic Inquiry and Word Count (LIWC) methodology. Thematic Analysis was used to explore themes in the narratives. Scores on relevant LIWC dimensions of the 20 patients were compared with norm data for respondents without cancer. Patients with cancer scored higher on "anger" and "sadness" (psychologic processes dimension); lower on "insight," "causes," and "tentatives" (cognitive processes dimension); and lower on "religion." Major themes identified from the Thematic Analysis were resilience, fatigue, social relationships, turning inward psychologically, shared decision-making, and psychological support. Narratives of patients with cancer are a source of rich data on how persons with cancer make sense of their illness, its medical management, and its psychological and social consequences. Qualitative methods of data analysis (LIWC; Thematic Analysis) are a highly valuable element in the methodology of exploring patient experience.

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来源期刊
Journal of Patient Experience
Journal of Patient Experience HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.00
自引率
6.70%
发文量
178
审稿时长
15 weeks
期刊最新文献
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