学前班和我:教育-临床联系,以改善来自历史边缘化社区的发育迟缓和残疾儿童的健康公平。

IF 1.4 Q4 MEDICINE, RESEARCH & EXPERIMENTAL Contemporary Clinical Trials Communications Pub Date : 2025-02-01 DOI:10.1016/j.conctc.2024.101412
Tina L. Schuh , Kathleen R. Diviak , Sarai Coba-Rodriguez , Emily Pela , Raphael Kinney , Michael L. Berbaum , Amanda Klemas , Kruti Acharya , Molly Martin , Reshma Shah
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引用次数: 0

摘要

社会和结构上的不平等导致了黑人、拉丁裔/黑人/黑人和低收入学龄前发育迟缓和残疾儿童(PCw/DD)之间长期存在的医疗保健差距,剥夺了他们获得教育和治疗服务的权利,而这些服务可以改善未来的学术、经济和健康成果。为了解决这个问题,我们开发了学前班和我(PreM),这是一个社区-临床联系(CCL),在医疗机构中实施,服务于历史上边缘化的社区。这种新颖的CCL是一种教育-医疗联动模式,旨在增加PCw/DD获得校本服务的机会。PreM将ccl的关键组成部分与个性化的医疗教育护理计划和远程导航员支持相结合,针对影响获得校本治疗和教育服务的多个层面的影响。我们将在现实世界的服务交付条件的两种模型中使用混合效率-实施方法。参与者(n = 320)将被随机分为6个月的PreM组或延迟6个月后开始干预的等候名单对照组。我们的具体目标是测试PreM在获得校本服务和保健服务成果方面的有效性;使用混合方法检查干预效果的中介;并探索健康的社会决定因素作为潜在的调节因素。我们将同时进行实施评估。本研究的结果有可能支持在儿科临床环境中有效实施CCL模式,服务于历史上边缘化的社区,可用于改善具有一系列健康状况的家庭及其儿童的健康结果。
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Preschool and Me: Educational-clinical linkage to improve health equity for children with developmental delays and disabilities from historically marginalized communities
Societal and structural inequities have resulted in longstanding health care disparities among Black, Latino/a/e, and low-income preschool children with developmental delays and disabilities (PCw/DD), depriving them of educational and therapeutic services that improve future academic, economic, and health outcomes. To address this issue, we developed Preschool and Me (PreM), a community-clinical linkage (CCL) implemented within healthcare settings serving historically marginalized communities. This novel CCL, an educational-medical linkage model, aims to increase access to school-based services for PCw/DD. Combining key components of CCLs with a personalized medical-education care plan and remote navigator support, PreM targets multiple levels of influence impacting access to school-based therapeutic and educational services. We will utilize a hybrid effectiveness-implementation approach in two models of real-world service delivery conditions. Participants (n = 320) will be randomized to either 6 months of PreM or a waitlist control arm beginning the intervention after a 6-month delay. Our specific aims are to test the effectiveness of PreM on access to school-based services as well as health service outcomes; examine mediators of intervention effects using a mixed-methods approach; and explore social determinants of health as potential moderators. We will simultaneously conduct an implementation evaluation. The results of this study have the potential to support effective implementation of CCL models within pediatric clinical settings serving historically marginalized communities which can be utilized to improve health outcomes for families and their children with a range of health conditions.
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来源期刊
Contemporary Clinical Trials Communications
Contemporary Clinical Trials Communications Pharmacology, Toxicology and Pharmaceutics-Pharmacology
CiteScore
2.70
自引率
6.70%
发文量
146
审稿时长
20 weeks
期刊介绍: Contemporary Clinical Trials Communications is an international peer reviewed open access journal that publishes articles pertaining to all aspects of clinical trials, including, but not limited to, design, conduct, analysis, regulation and ethics. Manuscripts submitted should appeal to a readership drawn from a wide range of disciplines including medicine, life science, pharmaceutical science, biostatistics, epidemiology, computer science, management science, behavioral science, and bioethics. Contemporary Clinical Trials Communications is unique in that it is outside the confines of disease specifications, and it strives to increase the transparency of medical research and reduce publication bias by publishing scientifically valid original research findings irrespective of their perceived importance, significance or impact. Both randomized and non-randomized trials are within the scope of the Journal. Some common topics include trial design rationale and methods, operational methodologies and challenges, and positive and negative trial results. In addition to original research, the Journal also welcomes other types of communications including, but are not limited to, methodology reviews, perspectives and discussions. Through timely dissemination of advances in clinical trials, the goal of Contemporary Clinical Trials Communications is to serve as a platform to enhance the communication and collaboration within the global clinical trials community that ultimately advances this field of research for the benefit of patients.
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