Sarah Ofori-Ansah, Michelle Evans, Janice Jones, Nicola Thomas
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引用次数: 5
摘要
背景:患有长期疾病的年轻人可能很难接受他们的诊断，并可能在管理他们的病情时变得不堪重负。从儿科到成人服务的次优转移与由此产生的服务脱离可能导致较少参与护理和决策。共同决策可以提高健康决策的参与度，提高对治疗/治疗和护理的满意度。目的:通过文献综述，探讨和了解年轻人在医疗保健方面的决策经验。设计:综合文献综述。数据来源:检索1999年1月至2020年1月间发表的相关文献，检索CINAHL、EMCARE、PsycINFO、HMIC、EMBASE、Web of Science、PubMed、MEDLINE、EBSCOHOST和COCHRANE数据库。结果:13篇主要研究论文符合纳入标准。确定了四个主题:(1)信息传递和传播;(2)参与决策;(3)影响决策的社会因素;(4)决策的情绪影响。结论:患有长期疾病的年轻人有特定的决策需求，这可能会影响他们的情绪健康。需要进行研究，特别关注青年人在卫生保健方面的决策经验。
Decision-making experiences of young adults with long-term conditions.
Background: Young adults with long-term conditions can struggle to accept their diagnosis and can become overwhelmed with managing their condition. Suboptimal transfer from paediatric to adult services with a resultant disengagement with the service can result in less involvement in care and decision-making. Shared decision-making can improve involvement in health decisions and increase satisfaction with treatment/therapy and care.
Objectives: An integrative literature review was conducted to explore and understand young adults' experiences of decision-making in health care.
Design: An integrative literature review.
Data sources: CINAHL, EMCARE, PsycINFO, HMIC, EMBASE, Web of Science, PubMed, MEDLINE, EBSCOHOST and COCHRANE databases were searched for relevant literature published between January 1999 and January 2020.
Findings: Thirteen primary research papers met the inclusion criteria. Four main themes were identified: (1) Information delivery and communication; (2) participation in decision-making; (3) social factors influencing decision-making and (4) emotional impact of decision-making.
Conclusions: Young adults with long-term conditions have specific decision-making needs which can impact their emotional health. Research with a specific focus on young adults' experiences of decision-making in health care is needed.
期刊介绍：
The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA).
The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given.
The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.
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