土耳其的血红蛋白病控制项目。

Duran Canatan, M Rifat Kose, Munip Ustundag, Dilek Haznedaroglu, Sema Ozbas
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引用次数: 91

摘要

在土耳其,血红蛋白病是一个非常重要的健康问题。迄今为止,已经进行了许多研究,但还没有国家血红蛋白病控制计划(HCP)。土耳其国家血红蛋白病委员会(TNHC)成立后,所有中心、基金会和协会被合并为一个由卫生部控制的组织。卫生部和TNHC已开始登记来自16个不同城市的377,339名健康受试者的筛查结果,记录的-地中海贫血特征的平均频率为4.3%。-地中海贫血特征的最高流行率为安塔利亚地区(13.1%),HbS特征的最高流行率为库库罗娃地区(10%)。其次,针对预防和治疗血红蛋白病,出版了《与遗传性血液病作斗争的书面条例》。卫生部和TNHC选择了位于色雷斯、马尔马拉、爱琴海、地中海和东南部地区的33个省份,这些省份出生时严重血红蛋白病的发病率很高。成立了血红蛋白病科学委员会,出版了指南,并在这些高危省份启动了全国性的HCP。
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Hemoglobinopathy control program in Turkey.

Hemoglobinopathies are a very important health problem in Turkey. To date many studies have been performed but there has been no national hemoglobinopathy control program (HCP). After the Turkish National Hemoglobinopathy Council (TNHC) was created all centers, foundations, and associations were combined into one organization controlled by the Ministry of Health (MOH). The MOH and the TNHC have started to register the results of the screening of 377,339 healthy subjects from 16 different cities and the recorded average frequency of the beta-thalassemia trait was 4.3%. The highest prevalence of thebeta-thalassemia trait (13.1%) was found in the Antalya region and of the HbS trait (10%) in the Cukurova region. Next, written regulations for the Fight against Hereditary Blood Disease were published especially for preventing and treating hemoglobinopathies. The MOH and the TNHC selected 33 provinces situated in the Thrace, Marmara, Aegean, Mediterranean and South Eastern regions with a high birth prevalence of severe hemoglobinopathies. The hemoglobinopathy scientific committee was set up, a guidebook was published and a national HCP was started in these high-risk provinces.

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