胎儿酒精谱系障碍:当科学、医学、公共政策和法律发生冲突时

Kenneth R. Warren, Brenda G. Hewitt
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引用次数: 42

摘要

从历史上看,酒精被用于不同的目的,包括作为宗教仪式的一部分,作为食物,有时作为药物,以及众所周知的饮料用途。直到最近,这些目的都没有改变,而且有时彼此不一致,导致科学、医学、公共政策和法律方面的政策和实践发生冲突。在胎儿酒精谱系障碍(FASD)领域尤其如此,在这一领域,饮酒对子宫内和出生后的儿童的不利后果可能自古以来就已观察到,但根据这种观察所采取的行动既受到危害证据的影响,也受到当时社会/文化/政治背景的影响。本文概述了当新的科学发现与主流医学实践相冲突时所固有的困惑,与FASD相关的这种困惑的历史,包括围绕酒精和怀孕产生的公共政策和法律问题,以及仍然面临的研究和临床挑战。2009年Wiley-Liss出版社出版。Dev - disability Rev 2009; 15:170-175。
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Fetal alcohol spectrum disorders: When science, medicine, public policy, and laws collide†

Historically, alcohol has been used for different purposes including as a part of religious observances, as a food, at times as a medicine and its well-known use as a beverage. Until relatively recently these purposes have not changed and have at times been at odds with one another, resulting in collisions among policies and practices in science, medicine, public policy and the law. One area in which this has been particularly true is that of fetal alcohol spectrum disorders (FASD) where the adverse consequences of consumed alcohol on children in the womb and after birth may have been observed since antiquity, but the actions taken based on such observations have been influenced as much by the socio/cultural/political context of the times in which they were made as by evidence of harm. This article provides an overview of the inherent confusion when new scientific findings confront prevailing medical practice, the history involved in this confusion with respect to FASD, including public policy and legal issues that have arisen around alcohol and pregnancy, and the research and clinical challenges still being faced. Published 2009 Wiley-Liss, Inc. Dev Disabil Res Rev 2009;15:170–175.

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