促进对乳腺癌患者的社会支持。

Meredith M Skeels, Kenton T Unruh, Christopher Powell, Wanda Pratt
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引用次数: 157

摘要

在接受癌症治疗时,社会支持是一个至关重要但未得到充分利用的资源。不充分利用发生在两种情况下:(a)当患者未能从家人和朋友那里寻求信息、物质援助和情感支持时,或(b)当家人和朋友未能满足患者的个性化需求和偏好时。当保持病人状态的最新状态时,社交网络是最有效的,然而更新每个人都需要病人付出的努力。为了改善这种情况,我们描述了乳腺癌患者参与设计活动的结果。在这个过程中,我们发现了社交网络需要的信息,以及技术可以帮助打破的社会支持障碍。我们使用Facebook Connect构建的原型包含明确的功能,以减少这些障碍,从而促进与强大的社会支持相关的健康结果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Catalyzing Social Support for Breast Cancer Patients.

Social support is a critical, yet underutilized resource when undergoing cancer care. Underutilization occurs in two conditions: (a) when patients fail to seek out information, material assistance, and emotional support from family and friends or (b) when family and friends fail to meet the individualized needs and preferences of patients. Social networks are most effective when kept up to date on the patient's status, yet updating everyone takes effort that patients cannot always put in. To improve this situation, we describe the results of our participatory design activities with breast cancer patients. During this process, we uncovered the information a social network needs to stay informed as well as a host of barriers to social support that technology could help break down. Our resulting prototype, built using Facebook Connect, includes explicit features to reduce these barriers and thus, promote the healthy outcomes associated with strong social support.

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