"有时很难有正常的生活":探索精神分裂症患者照顾者负担的定性研究结果。

IF 3.6 Q1 PSYCHIATRY Schizophrenia Research and Treatment Pub Date : 2014-01-01 Epub Date: 2014-04-03 DOI:10.1155/2014/368215
Adam Gater, Diana Rofail, Chloe Tolley, Chris Marshall, Linda Abetz-Webb, Steven H Zarit, Carmen Galani Berardo
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摘要

目的。精神分裂症是一种发病早、病程长的疾病,因此照顾精神分裂症患者可能会对照顾者的生活产生重大影响。本研究旨在调查精神分裂症患者照顾者的主观感受,从而了解该人群的 "照顾者负担"。研究方法研究人员对 19 位讲美国英语的精神分裂症患者(至少为中度患者)护理人员进行了面对面的定性访谈。采用基础理论方法对访谈记录进行了分析,并根据分析结果建立了一个初步的概念模型,概述了照顾者的经历。结果研究结果支持以下论断:精神分裂症患者在很大程度上依赖于照顾者提供的照顾,而照顾者随后表示没有时间照顾自己和承担其他责任(如家庭和工作)。照顾者的负担经常表现为对身体(如疲劳、生病)和情绪(如抑郁和焦虑)的损害。结论照顾精神分裂症患者会对非正式(无偿)照顾者的生活产生重大影响,减轻照顾者的负担对于控制个人和社会成本至关重要。未来的研究应集中于建立可靠有效的方法来评估精神分裂症患者照顾者的负担,从而为制定和评估减轻这种负担的干预措施提供依据。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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"Sometimes It's Difficult to Have a Normal Life": Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia.

Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding "caregiver burden" in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.

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来源期刊
CiteScore
4.60
自引率
0.00%
发文量
2
审稿时长
14 weeks
期刊介绍: Schizophrenia Research and Treatment is a peer-reviewed, Open Access journal that publishes original research articles, review articles, and clinical studies related to all aspects of schizophrenia.
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