约翰-布赖登纪念讲座:利用社区健康指数和记录链接的发展改善健康状况。

Frank Sullivan
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摘要

从 1998 年到 2008 年的十年间,约翰-布赖登博士一直担任欧洲医学信息学联合会的执行干事。当他从联合会的工作岗位上退休时,他被授予了荣誉研究员称号。在他 20 世纪 60 年代的一篇早期论文中,他描述了一些被称为计算机的相对新颖的机器如何取代当时使用的打孔卡。他比许多人更早地发现,计算机可以用于对单个病人的护理,更可以用于对群体病人的护理。他采用了一种独特的病人标识符(社区健康指数),使苏格兰能够将电子病历数据连接起来,对慢性病进行确定性的临床管理。格拉斯哥昏迷量表的开发就是一个例子。在病历链接的早期阶段就展示出此类项目的重大价值,这样做的一个好处是,数据使用的管理框架变得相对宽松。另一项重大成功是糖尿病护理;从综合数据中获得的洞察力可以用于改善服务,提高服务效率。苏格兰开发了数据安全港,不仅对物理环境,而且对人员、机制和项目都进行控制,以确保安全和保密。欧洲也在采取类似行动。由伦敦国王学院领导的 TRANSFoRm(www.transformproject.eu)主要关注初级医疗数据。医学信息学的卓越成就得益于其先驱们的工作,包括约翰-布赖登(John Bryden)发表的第一篇论文,他在论文中提出计算机可能是有用的。
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The John Bryden memorial lecture: Improving health with the community health index and developments in record linkage.

Dr. John Bryden was the executive officer of European Federation for Medical Informatics for a decade between 1998 and 2008. When he retired from active work within the federation, he was awarded an honorary fellowship. In one of his early papers from the 1960s, he described how some relatively novel machines called computers might replace the punched cards that were being used at the time. He saw, before many others, that computers could be used for the care of individual patients and even more so for groups of patients. He implemented a unique patient identifier (community health index) which has enabled Scotland to link electronic medical record data for clinical management of chronic disease deterministically. An example was the development of the Glasgow Coma Scale. One benefit of demonstrating significant value in projects such as this at an early stage of record linkage was that the governance framework for the use of data became relatively permissive. Another major success was diabetes care; it became possible to apply insights from the aggregate data to improve services and make them more efficient. Scotland has developed safe havens for data where not only the physical environment but also the people, mechanisms and projects are all subject to control to ensure safety and confidentiality. Similar moves are under way in Europe. TRANSFoRm (www.transformproject.eu) led by King's college in London is mainly focused on primary care data. Excellence in medical informatics is possible as a result of the work of its pioneers, including John Bryden's first paper suggesting that computers might be useful.

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