协作和网络。

Q4 Biochemistry, Genetics and Molecular Biology Progress in Tumor Research Pub Date : 2016-01-01 Epub Date: 2016-09-05 DOI:10.1159/000447071
O Husson, E Manten-Horst, W T A van der Graaf
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引用次数: 14

摘要

认识到患有癌症的青少年的独特特征,需要在儿科和成人癌症之间进行合作,以照顾青少年和年轻人(AYAs)。儿科和成人肿瘤医院部门都不能单独提供适合年龄的护理。弥合AYA癌症患者护理差距的最佳方法是将他们的护理集中在专门的AYA护理计划中,包括以下基本组成部分:提供适合发展的多学科(支持性)护理,提供AYA住院和门诊设施,以及在成人和儿科部门之间合作的AYA专业医疗保健专业知识。障碍与缓慢出现的益处证据、文化差异(儿科和成人肿瘤专业人员之间的合作)、行政和后勤挑战(AYA数量少,难以在每家医院创建AYA计划)以及财务方面(依赖慈善基金)有关。AYA计划的可持续发展需要在临床和患者社区以及政府层面接受作为护理标准。为了提高全球AYA癌症治疗研究和创新的质量、公平性和数量,有必要联合起来,在国际网络中开展合作,研究诸如优质护理的特征、儿科和成人临床团队、试验小组和专业协会之间的合作以及诸如Critical Mass、Canteen或欧洲青少年和年轻成人癌症网络等AYA特定组织的问题。
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Collaboration and Networking.

Awareness of the need for collaboration across pediatric and adult cancer to care for adolescents and young adults (AYAs) arose from the recognition of the unique characteristics of AYAs with cancer. Neither pediatric nor adult oncology hospital departments are able to provide age-appropriate care single handedly. The best way to bridge the gap in care of AYA cancer patients is to centralize aspects of their care within dedicated AYA care programs, including the following essential components: provision of developmentally appropriate and multidisciplinary (supportive) care, availability of AYA inpatient and outpatient facilities and healthcare professional AYA expertise as collaboration between adult and pediatric departments. Barriers are related to the slowly emerging evidence of benefit, cultural differences (collaboration between pediatric and adult oncology professionals), administrative and logistic challenges (small number of AYAs makes it difficult to create an AYA program in every hospital) and financial aspects (dependency on philanthropic funds). The sustainable development of an AYA program requires acceptance as a standard of care at the clinical and patient community and at government level. To improve the quality, equity and quantity of research and innovation in AYA cancer care across the world, it is necessary to join forces and collaborate in international networks to study issues such as the features of quality care, collaboration between pediatric and adult clinical teams, trial groups and professional societies, and AYA-specific groups such as Critical Mass, Canteen or European Network for Teenagers and Young Adults with Cancer.

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来源期刊
Progress in Tumor Research
Progress in Tumor Research 医学-肿瘤学
CiteScore
2.50
自引率
0.00%
发文量
0
期刊介绍: The scientific book series ''Progress in Tumor Research'' aims to provide in depth information about important developments in cancer research. The individual volumes are authored and edited by experts to provide detailed coverage of topics selected as either representing controversial issues or belonging to areas where the speed of developments necessitates the kind of assistance offered by integrative, critical reviews.
期刊最新文献
Bovine adenoviruses. Imaging for Target Volume Definition and Response Assessment in Lung Cancer. Increasing Access to Clinical Trials and Innovative Therapy for Teenagers and Young Adults with Cancer - A Multiple Stakeholders and Multiple Steps Process. Collaboration and Networking. Adult Cancers in Adolescents and Young Adults.
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