Madison Sunnquist, Laura Nicholson, Leonard A Jason, Kenneth J Friedman
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引用次数: 0
摘要
目前的研究旨在更好地了解肌痛性脑脊髓炎(ME)和慢性疲劳综合症(CFS)患者在治疗其衰弱性疾病时的经历。在 898 名参与者中,只有不到一半的人曾经看过 ME 或 CFS 专家,尽管 99% 的参与者对专家治疗感兴趣。参与者最常提到的阻碍他们看专科医生的因素是地理和经济障碍。此外,对专科医疗服务的满意度大大超过了对非专科医疗服务的满意度。这些研究结果表明,由于缺乏可用的医疗服务,患有 ME 和 CFS 的人是医疗服务不足的人群。CFS咨询委员会和美国国立卫生研究院预防之路工作组建议成立ME和CFS卓越中心,以改善ME和CFS患者的医疗服务。目前的研究记录了建立这些中心的必要性,因为它们将改善获得优质医疗服务的地理和经济障碍。
Access to Medical Care for Individuals with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: A Call for Centers of Excellence.
The current study sought to better understand the experience of individuals with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) in accessing care for their debilitating illness. Of 898 participants, less than half had ever seen an ME or CFS specialist, though 99% of participants were interested in specialist care. Participants cited geographic and financial barriers as most frequently precluding access to specialists. Furthermore, satisfaction with specialist care greatly exceeded satisfaction with non-specialist care. These findings suggested that individuals with ME and CFS represent a medically-underserved population, due to lack of available care. The CFS Advisory Committee and NIH Pathways to Prevention Working Group recommended the creation of ME and CFS Centers of Excellence to improve the healthcare access of patients with ME and CFS. The current study documents the need for these centers, as they would ameliorate geographic and financial barriers to quality care.