自闭症谱系障碍儿童母亲压力水平的预测因素--支持需求和应对策略。

Autism Research and Treatment Pub Date : 2017-01-01 Epub Date: 2017-12-25 DOI:10.1155/2017/8685950
Sheri R Kiami, Shelley Goodgold
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引用次数: 0

摘要

本研究调查了自闭症谱系障碍(ASD)儿童母亲的压力、应对策略和支持需求。由 70 位母亲组成的方便样本完成了家长压力指数简表(PSI-SF)、家长应对健康量表(CHIP)和改良家庭需求问卷(FNQ)。77% 的母亲的 PSI-SF 分数反映了临床上显著的压力水平,62.4% 的母亲认为重要需求未得到满足。最常报告的五种未满足的重要需求是:(1)经济支持;(2)从责任中解脱出来;(3)了解其他参加课后活动的儿童;(4)休息/睡眠;(5)帮助她们对未来保持希望。大多数应对策略(81%)被认为是有帮助的。此外,应对策略和支持需求都是预测母亲压力的因素。有帮助的应对策略每增加一个百分点,产妇的压力得分就会降低 0.402 分;未满足的需求每增加一个百分点,产妇的压力得分就会增加 0.529 分。鉴于不同参与者和不同研究对问卷的回答存在很大差异,我们提倡使用用户友好型问卷,如 PSI-SF、CHIP 和 FNQ,以确定每个家庭在孩子一生中不断变化的独特重要需求,并指导优先护理、资源整合和额外服务的转介。
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Support Needs and Coping Strategies as Predictors of Stress Level among Mothers of Children with Autism Spectrum Disorder.

This study examined maternal stress, coping strategies, and support needs among mothers of children with Autism Spectrum Disorder (ASD). A convenience sample of 70 mothers completed the Parent Stress Index Short Form (PSI-SF), Coping Health Inventory for Parents (CHIP), and Modified Family Needs Questionnaire (FNQ). PSI-SF scores reflected clinically significant levels of stress for 77% of mothers, and mothers identified 62.4% of important needs as unmet. The five most frequently reported important unmet needs were (1) financial support; (2) break from responsibilities; (3) understanding of other after-school program children; (4) rest/sleep; (5) help remaining hopeful about the future. Most coping strategies (81%) were identified as helpful. Additionally, both coping strategies and support needs served as predictors for maternal stress. Maternal stress scores decreased by .402 points for each percent increase in helpful coping strategy, and stress scores increased by .529 points with each percent increase in unmet needs. Given large variation in questionnaire responses across participants and studies, utilization of user-friendly questionnaires, such as the PSI-SF, CHIP, and FNQ, is advocated to determine the evolving important needs unique to each family over the child's lifetime as well as guide prioritization of care, compilation of resources, and referrals for additional services.

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审稿时长
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期刊最新文献
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