健康研究中的公民科学模式:澳大利亚的评论。

Online journal of public health informatics Pub Date : 2019-12-31 eCollection Date: 2019-01-01 DOI:10.5210/ojphi.v11i3.10358
Ann Borda, Kathleen Gray, Laura Downie
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引用次数: 0

摘要

本定性综述探讨了既有的公民科学模式如何为澳大利亚公众有意义地参与健康研究提供信息和支持。特别是,随着参与式健康研究方法的发展,以及越来越多的消费者通过数字技术参与到这项研究中来,我们对健康和生物医学公民科学研究最佳实践的理解还存在差距,无法应对这些模式的转变。值得注意的差距是,我们如何才能更清晰地定义此类研究的参数,以及哪些公民科学模式可以最好地支持这些参数范围内的数字化参与。预计这一领域的进一步工作将有助于了解既定的公民科学方法可如何帮助提高公众参与健康研究的质量并将其转化为成果。
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Citizen Science Models in Health Research: an Australian Commentary.

This qualitative review explores how established citizen science models can inform and support meaningful engagement of public in health research in Australia. In particular, with the growth in participatory health research approaches and increasing consumer participation in contributing to this research through digital technologies, there are gaps in our understanding of best practice in health and biomedical citizen science research to address these paradigm shifts. Notable gaps are how we might more clearly define the parameters of such research and which citizen science models might best support digitally-enabled participation falling within these. Further work in this area is expected to lead to how established citizen science methods may help improve the quality of and the translation of public engagement in health research.

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