痴呆症和帕金森氏症居家照顾者的社会心理适应:比较研究

IF 2.1 4区 医学 Q3 CLINICAL NEUROLOGY Parkinson's Disease Pub Date : 2020-04-28 eCollection Date: 2020-01-01 DOI:10.1155/2020/2086834
María Cristina Lopes Dos Santos, María Victoria Navarta-Sánchez, José Antonio Moler, Ignacio García-Lautre, Sagrario Anaut-Bravo, Mari Carmen Portillo
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引用次数: 0

摘要

帕金森氏症和痴呆症等神经退行性疾病在全球非常普遍。患有这些疾病的人通常会得到家人的居家护理和帮助,而这些家人必须为接受护理者付出大量的时间。由于这两种疾病的退化过程对接受护理者和护理者以及其他家庭成员的生活质量都有影响,因此研究家庭护理者对这两种疾病退化过程的心理社会适应是很有意义的。本研究比较了照顾痴呆症患者和帕金森病患者的家庭成员的社会心理适应情况,并确定了影响这两种疾病适应过程的主要社会人口变量。为此,研究人员对西班牙纳瓦拉的 157 名家庭护理人员进行了疾病社会心理适应量表(PAIS-SR)和社会人口学调查。结果显示,帕金森病患者和痴呆症患者的家庭照顾者对疾病的适应情况总体上令人满意,并且与居住地、收入和就业状况等变量有关。然而,疾病本身(帕金森病或痴呆症)被认为是对社会心理适应水平影响最大的变量。
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Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson's Disease: A Comparative Study.

Neurodegenerative diseases such as Parkinson's and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers' psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson's disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson's disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson's or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.

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来源期刊
Parkinson's Disease
Parkinson's Disease CLINICAL NEUROLOGY-
CiteScore
5.80
自引率
3.10%
发文量
0
审稿时长
18 weeks
期刊介绍: Parkinson’s Disease is a peer-reviewed, Open Access journal that publishes original research articles, review articles, and clinical studies related to the epidemiology, etiology, pathogenesis, genetics, cellular, molecular and neurophysiology, as well as the diagnosis and treatment of Parkinson’s disease.
期刊最新文献
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