法兰德斯(比利时)扩大携带者筛查:一项关于非怀孕育龄妇女观点的在线调查。

IF 1.7 4区医学 Q3 PHARMACOLOGY & PHARMACY Personalized medicine Pub Date : 2021-07-01 Epub Date: 2021-06-04 DOI:10.2217/pme-2020-0155

Eva Van Steijvoort, Heleen Devolder, Inne Geysen, Silke Van Epperzeel, Hilde Peeters, Karen Peeraer, Gert Matthijs, Pascal Borry

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引用次数: 5

摘要

目的:尽管在普通人群中对扩大携带者筛查(ECS)有相当大的兴趣，但ECS的实际摄入量仍然很低。为了更好地理解育龄个体的观点，需要更多的见解。资料与方法:通过比利时法兰德斯的公立药店招募育龄未怀孕妇女参与在线调查。结果:大多数参与者(63.6%)表示他们将来会考虑使用ECS。大约二分之一的参与者对ECS持积极态度。结论:本研究报告了法兰德斯(比利时)非怀孕育龄妇女关于ECS的有价值的见解，可用于正在进行的关于ECS负责任实施的辩论。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Expanded carrier screening in Flanders (Belgium): an online survey on the perspectives of nonpregnant reproductive-aged women.

Aim: Despite a considerable interest in expanded carrier screening (ECS) in the general population, actual uptake of ECS remains low. More insights are needed to better understand the perspectives of reproductive-aged individuals. Materials & methods: Nonpregnant women of reproductive age recruited through public pharmacies throughout Flanders (Belgium) were invited to participate in an online survey. Results: Most participants (63.6%) indicated they would consider ECS for themselves in the future. About one in two participants showed a positive attitude toward ECS. Conclusion: This study reports valuable insights in the perspectives of nonpregnant reproductive-aged women in Flanders (Belgium) regarding ECS that can be used in the ongoing debate on the responsible implementation of ECS.

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来源期刊

Personalized medicine 医学-药学

CiteScore

3.30

自引率

4.30%

发文量

审稿时长

6-12 weeks

期刊介绍： Personalized Medicine (ISSN 1741-0541) translates recent genomic, genetic and proteomic advances into the clinical context. The journal provides an integrated forum for all players involved - academic and clinical researchers, pharmaceutical companies, regulatory authorities, healthcare management organizations, patient organizations and others in the healthcare community. Personalized Medicine assists these parties to shape thefuture of medicine by providing a platform for expert commentary and analysis. The journal addresses scientific, commercial and policy issues in the field of precision medicine and includes news and views, current awareness regarding new biomarkers, concise commentary and analysis, reports from the conference circuit and full review articles.