有和没有发育障碍的人之间研究合作的经验教训。

IF 1.7 3区 医学 Q2 EDUCATION, SPECIAL Intellectual and Developmental Disabilities Pub Date : 2022-10-01 DOI:10.1352/1934-9556-60.5.405
Julianna H Kim, Oscar E Hughes, Sarah A Demissie, Timothy J Kunzier, W Catherine Cheung, Edwin C Monarrez, Meghan M Burke, Zach Rossetti
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引用次数: 2

摘要

与发育障碍(DD)社区相关的研究应包括与DD患者的合作。不幸的是,DD患者很少以有意义的方式参与研究项目。关于如何与患有残疾的研究人员公平合作的指导很少。本文的目的是通过定性和定量的方法,在患有和不患有残疾的研究人员之间分享一项合作研究的经验教训,以开发和检验公民参与干预对残疾过渡年龄青年的有效性。它包括我们的研究团队如何补偿患有DD的研究人员,明确团队成员的角色,在使用定性和定量方法时利用患有DD的研究人员的专业知识,以及在整个研究过程中集成技术。
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Lessons Learned From Research Collaboration Among People With and Without Developmental Disabilities.

Research related to the developmental disability (DD) community should include collaboration with individuals with DD. Unfortunately, people with DD are infrequently involved in research projects in meaningful ways, and there is little guidance about how to collaborate equitably with researchers with DD. The purpose of this article is to share lessons learned from a collaborative research study among researchers with and without DD using both qualitative and quantitative methods to develop and examine the effectiveness of a civic engagement intervention for transition-aged youth with disabilities. It includes how our research team compensated researchers with DD, clarified team member roles, leveraged the expertise of researchers with DD in using both qualitative and quantitative methods, and integrated technology throughout the research process.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
41
期刊介绍: Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.
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