基于网络的电子健康临床决策支持系统作为系统性红斑狼疮患者治疗目标管理的工具:开发和初步可用性评估。

IF 4.1 Q1 HEALTH CARE SCIENCES & SERVICES BMJ Health & Care Informatics Pub Date : 2023-09-01 DOI:10.1136/bmjhci-2023-100811
Agner Russo Parra Sanchez, Max G Grimberg, Myrthe Hanssen, Moon Aben, Elianne Jairth, Prishent Dhoeme, Michel W P Tsang-A-Sjoe, Alexandre Voskuyl, Hendrik Jan Jansen, Ronald van Vollenhoven
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引用次数: 0

摘要

背景:靶向治疗(T2T)是目前正在研究的一种治疗策略,用于系统性红斑狼疮(SLE)。在T2T策略的背景下,患者和风湿病学家在做出最佳治疗决策方面几乎没有得到支持,因此,使用信息技术系统地处理数据并支持信息和知识可能会改善常规决策实践,有助于提供基于价值的护理。目的:设计和开发在线临床决策支持系统(CDSS)工具“SLE-T2T”,并测试其在系统性红斑狼疮患者管理中实施T2T策略的可用性。方法:CDSS的原型被设想为一个基于网络的应用程序,其任务是根据输入的患者数据生成适当的治疗建议。一旦开发完成,就实施了系统可用性评分问卷,以测试电子健康工具是否用户友好、易于理解、易于交付和面向工作流程。综合了参与者评论中的数据,并确定了需要改进的因素。结果:基于中期可用性和可接受性评估,开发了基于网络的测试版系统。7名参与者完成了SUS调查。SLE-T2T的SUS评分中位数为79(0至100分),将该应用归类为“良好”,并表明需要对设计进行微小改进。结论:SLE-T2T是第一个设计用于T2T环境下SLE患者管理的eHealth工具。SUS评分和非结构化反馈显示,该数字仪器在未来的临床试验中得到了高度认可。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Web-based eHealth Clinical Decision Support System as a tool for the treat-to-target management of patients with systemic lupus erythematosus: development and initial usability evaluation.

Background: Treat-to-target (T2T) is a therapeutic strategy currently being studied for its application in systemic lupus erythematosus (SLE). Patients and rheumatologists have little support in making the best treatment decision in the context of a T2T strategy, thus, the use of information technology for systematically processing data and supporting information and knowledge may improve routine decision-making practices, helping to deliver value-based care.

Objective: To design and develop an online Clinical Decision Support Systems (CDSS) tool "SLE-T2T", and test its usability for the implementation of a T2T strategy in the management of patients with SLE.

Methods: A prototype of a CDSS was conceived as a web-based application with the task of generating appropriate treatment advice based on entered patients' data. Once developed, a System Usability Score (SUS) questionnaire was implemented to test whether the eHealth tool was user-friendly, comprehensible, easy-to-deliver and workflow-oriented. Data from the participants' comments were synthesised, and the elements in need for improvement were identified.

Results: The beta version web-based system was developed based on the interim usability and acceptance evaluation. 7 participants completed the SUS survey. The median SUS score of SLE-T2T was 79 (scale 0 to 100), categorising the application as 'good' and indicating the need for minor improvements to the design.

Conclusions: SLE-T2T is the first eHealth tool to be designed for the management of SLE patients in a T2T context. The SUS score and unstructured feedback showed high acceptance of this digital instrument for its future use in a clinical trial.

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来源期刊
CiteScore
6.10
自引率
4.90%
发文量
40
审稿时长
18 weeks
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