了解自闭症儿童家长家庭导航计划的有效性和可行性。

IF 1.7 3区医学 Q2 EDUCATION, SPECIAL Intellectual and Developmental Disabilities Pub Date : 2023-10-01 DOI:10.1352/1934-9556-61.5.426

Meghan M Burke, W Catherine Cheung, Julianna Kim

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引用次数: 0

摘要

系统导航可能很困难，尤其是对于资源匮乏的家庭（即“低收入”或符合以下指标之一的家庭：母亲拥有高中文凭或以下学历；主要照顾者失业；或家庭接受政府援助）。导航仪可以帮助家庭获得服务；然而，对领航员的培训尚不清楚。本研究的目的是确定支持父母访问和导航服务（SPANS）的有效性和可行性，这是一项开发导航器的计划。总共有19位资源匮乏的自闭症儿童家长参加了SPANS。参与者表现出对自闭症服务的了解显著提高，对其他家庭和系统变革的倡导也明显增强。出席率高，流失率低，可接受性高，忠诚度高。讨论了影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism.

Systems navigation can be difficult, especially for low-resourced families (i.e., families who are "low income" or meet one of the following indicators: mother has a high school diploma or less; primary caregiver is unemployed; or the family receives governmental assistance). Navigators may help families access services; however, the training of navigators is unclear. The purpose of this study was to determine the effectiveness and feasibility of Supporting Parents to Access and Navigate Services (SPANS), a program to develop navigators. Altogether, 19 low-resourced parents of children with autism participated in SPANS. Participants demonstrated significantly improved knowledge about autism services and perceived advocacy for other families and systemic change. There was high attendance, low attrition, high acceptability, and high fidelity. Implications are discussed.

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来源期刊

Intellectual and Developmental Disabilities Multiple-

CiteScore

2.60

自引率

11.10%

发文量

期刊介绍： Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.