特应性皮炎和皮质醇恐惧症对家庭生活质量的影响。

Oksana Kotarski, Marija Pečnjak, Mario Blekić, Ivana Bukvić, Blaženka Kljaić Bukvić
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引用次数: 0

摘要

本研究的目的是调查儿童特应性皮炎(AD)和皮质恐惧症对家庭生活质量的影响。AD儿童及其父母被纳入一项横断面研究。使用以患者为导向的特应性皮炎评分(PO-SCORAD)指数对AD的严重程度进行自我评估,使用局部皮质类固醇恐惧症评分(TOPICOP)对皮质恐惧症的严重程度以及使用家庭皮肤病生活质量指数(FDLQI)对AD对家庭生活质量的总体影响进行自我评估。我们纳入了330名父母,其中大多数是母亲(99.4%)和中位年龄为3岁的儿童(四分位间距,IQR 1.5-5.0岁)。PO SCORAD指数和TOPICOP评分的中位数分别为:19.1(IQR 13.6-24.1)和58.3(IQR 41.7-72.2)。FDQLI评分中位数为12(IQR 7-16)。分析了父母年龄、儿童年龄、儿童性别、过敏家族史、居住地、父母教育、儿童相关过敏性疾病、PO SCORAD和TOPICOP评分等自变量对FDLQI的影响。显著的模型是父母的年龄(保护因素)、PO SCORAD指数和TOPICOP评分,它们共同占FDLQI变异性的26.1%。该研究的结论是,儿童AD、其严重程度以及父母对慢性皮质类固醇治疗的恐惧会损害家庭生活质量。
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The Impact of Atopic Dermatitis and Corticophobia on the Quality of Family Life.

The aim of the study was to investigate the impact of atopic dermatitis (AD) in children and corticophobia on the quality of family life. Children with AD and their parents were included in a cross-sectional study. The severity of AD was self-assessed using the Patient Oriented-Scoring of Atopic Dermatitis (PO-SCORAD) index, and the severity of corticophobia using the Topical Corticosteroid Phobia (TOPICOP) score, and the general impact of AD on family quality of life using the Family Dermatology Life Quality Index (FDLQI). We included 330 parents, mostly mothers (99.4%) and children with a median age of 3 years (interquartile range, IQR 1.5-5.0 years). The median values of the PO SCORAD index and TOPICOP score were: 19.1 (IQR 13.6-24.1) and 58.3 (IQR 41.7-72.2), respectively. The median FDQLI score was 12 (IQR 7-16). The influence of independent variables such as parental age, child's age, child's gender, family history of allergies, place of residence, parental education, associated allergic disease in the child, PO SCORAD, and the TOPICOP score on the FDLQI was analysed. The significant models were the age of the parents (protective factor), the PO SCORAD index, and the TOPICOP score, which together accounted for 26.1% of the variability of FDLQI. Concusion of the study is that AD in children, its severity, and the parent's fear of chronic corticosteroid treatment impair the quality of family life.

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