从护理学角度分析“善终”概念——系统回顾与概念分析

Mohammad Esmaeili-Abdar
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摘要

背景:诸如“死得好”、“死得平和”、“适当的死亡”、“期望的死亡”,“有尊严的死亡”和“好的死亡”等词经常互换使用。然而,“善终”的概念及其定义属性没有明确的定义。似乎需要进一步的研究来澄清和发展“善终”的概念及其属性。本研究旨在分析和澄清“善终”的概念。方法:从1980年到2020年底,使用Magiran、SID、Scopus、Science Direct、PubMed、CINAHL、Google Scholar、ProQuest、Wiley和Ovid数据库进行系统的文献检索。文章的标题、摘要和关键词使用关键词“死亡”、“垂死”、“好死”、“死亡质量”、“生命终结偏好”、“临终质量”、《对死亡的态度》、“临终关怀”、“尊严”、“成功”和“平和”进行搜索。使用布尔搜索运算符“AND”和“OR”来合并搜索结果。我们还查阅了所有检索到的文章的参考文献列表,以查找其他相关文件。概念分析采用Walker和Avant的八步法进行。承认了“善终”概念的属性、前因、后果和用途。结果:共鉴定出7207个标题;经过消除重复、筛选和最终筛选,36份相关出版物仍有待分析。“善终”最常见的定义属性包括与社会文化规范的兼容性、个人经历、作为一个持续的过程、拥有控制权和自主权以及对宗教和精神的关注。善终的前因可能因临终者、照顾者和家人而异。“善终”最重要的后果主要与死者的家人有关(对护理人员的满意度、获得支持的机会、尊重、正直、适合社会的行为、对哀悼的满意度和减少家庭悲痛),以及与护理提供者有关的人(快速度过哀悼过程,确保为患者和家人尽最大努力,工作满意度,自我价值感和融入感)。结论:“善终”概念是一个动态过程,其意义在很大程度上取决于人们的生活经历。它要求拥有控制权和自主权,满足人类的基本需求,关注宗教和精神,并为垂死的人、他/她的家人和照顾者带来积极和平的生活体验。为了为患者提供“良好的死亡”和高质量的临终关怀,护理人员,尤其是护士,应该发展他们在临终关怀方面的知识和熟练程度。
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Analyzing the Concepts of “Good Death” from the Perspective of Nursing: A systematic review and concept analysis
Background: Words such as “dying well,” “dying peacefully,” “appropriate death,” “desired death,” “dignified death” and “good death,” are often used interchangeably. However, there is no clear definition of the concept of "good death" and its defining attributes. Further studies seem to be needed to clarify and develop the concept of “good death” and its attributes. This study aimed to analyze and clarify the concept of “good death”. Methods: A systematic literature search was conducted from 1980 to the end of 2020 using Magiran, SID, Scopus, Science Direct, PubMed, CINAHL, Google Scholar, ProQuest, Wiley, and Ovid, databases. The title, abstract, and keywords of the articles were searched using keywords of “death,” “dying,” “good death,” “quality of death,” “end of life preferences,” “quality of dying,” “attitude to death,” “terminal care,” “dignity,” “successful,” and “peaceful”. The Boolean search operators “AND” and “OR” were employed to merge search results. We also reviewed the reference lists of all retrieved articles to find other pertinent documents. Concept analysis was conducted using Walker and Avant’s eight-step method. The attributes, antecedents, consequences, and uses of the concept of “good death” were recognized. Results: A total of 7207 titles were identified; after elimination of duplicates, screening, and final selection, 36 relevant publications remained for analysis. The most common defining attributes of “good death” included compatibility with socio-cultural norms, personal experiences, being an ongoing process, having control and autonomy, and attention to religion and spirituality. Antecedents of a good death might vary for the dying person, the caregivers, and the family. The most important consequences of “good death” were mainly related to the family of the deceased (satisfaction with care providers, access to supports, respect, integrity, socially appropriate behavior, satisfaction with mourning, and reducing family grief), and those related to the care providers (quick passing of the process of mourning, being sure of doing their best for the patient and family, job satisfaction, a sense of self-worth and integration). Conclusion: The concept of “good death” was a dynamic process that its meaning heavily depends on the peoples lived experiences. It entails having control and autonomy, fulfilling the basic human needs, attention to religion and spirituality, and accompanies positive and peaceful lived experiences for the dying person, his/her family, and the caregivers. To provide patients with "good death" and quality end-of-life care, caregivers especially nurses should develop their knowledge and proficiency in end-of-life care.
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