养育残疾儿童的概念模式

IF 1.4 4区 社会学 Q3 FAMILY STUDIES Journal of Family Studies Pub Date : 2022-06-17 DOI:10.1080/13229400.2022.2085617
Rhett M. Billen, J. Sams, V. M. Nordquist
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引用次数: 0

摘要

一些研究和理论观点研究了抚养残疾儿童的经历。然而,许多这些研究和观点并没有提供一个基于父母自己观点的养育过程的全面框架。在本质性研究中,我们对20位残疾儿童(CWD)的父亲和母亲(10对父亲对母亲)进行了深入的访谈,调查了他们的育儿实践和经验。使用开放、轴向和选择性编码程序,我们确定了六个主要类别的反应,包括生活史、儿童特征、担忧和压力、正式社会支持、非正式社会支持和父母行为。我们提出了一个概念模型,旨在说明养育CWD的复杂性和细微差别,也足够广泛,可以应用于各种情况。我们讨论了本研究对慢性疾病家庭的影响,以及对他们的教育和干预措施。
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A conceptual model of parenting children with disabilities
ABSTRACT Several studies and theoretical perspectives have examined the experience of raising a child with a disability. However, many of these studies and perspectives have not provided a comprehensive framework of the parenting process grounded in the perspectives of the parents themselves. In this qualitative study of 20 mothers and fathers (10 mother-father dyads) of children with disabilities (CWD), we conducted individual in-depth interviews investigating their parenting practices and experiences. Using open, axial, and selective coding procedures, we identified six main categories of responses including life history, child characteristics, worry and stress, formal social support, informal social support, and parenting behaviours. We propose a conceptual model which aims to illustrate the complex and nuanced nature of parenting CWD that is also broad enough to be applied in a variety of circumstances. We discuss the implications of this study in terms of research on families of CWD and the education and interventions available to them.
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来源期刊
Journal of Family Studies
Journal of Family Studies FAMILY STUDIES-
CiteScore
3.20
自引率
12.50%
发文量
52
期刊介绍: The Journal of Family Studies is a peer reviewed international journal under the Editorship of Adjunct Professor Lawrie Moloney, School of Public Health, LaTrobe University; Australian Institute of Family Studies; and co-director of Children in Focus. The focus of the Journal of Family Studies is on the wellbeing of children in families in the process of change.
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