儿童和青少年接受血液透析或肾移植后的情绪影响和生活质量

IF 1.4 Q3 PEDIATRICS Revista Paulista De Pediatria Pub Date : 2019-11-25 DOI:10.1590/1984-0462/2020/38/2018221
A. Rotella, R. Nascimento, M. F. Camargo, P. K. Nogueira
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引用次数: 3

摘要

摘要目的:研究接受血液透析或肾移植(TX)的儿童和青少年与终末期肾病(ESKD)相关的情绪影响和生活质量(QOL)。方法:采用定量-定性研究。对48名ESKD儿童和青少年进行了访谈;其中一半接受了血液透析治疗,另一半接受了肾移植。他们各自的48名照料者也参与了这项研究。调查问卷包括儿童生活质量调查表和专题故事绘图工具。通过比较各组之间的得分总和来分析生活质量问卷的结果,基于主题的故事绘画包括使用弗洛伊德和拉康理论解释材料中包含的数据。结果:在生活质量问卷中,移植患者及其护理人员的总分更高,这表明肾移植后的生活质量更好。在问卷的具体方面,接受移植的儿童及其照顾者认为身体能力优越。两组在情感、社会和学校方面没有差异。然而,接受移植的患者的护理人员在学校方面的生活质量存在显著差异。在主题故事绘画中,无论治疗如何,两个被分析组的情绪痛苦都得到了证明。结论:尽管问卷调查结果表明移植确实改善了生活质量的某些方面,但在慢性肾脏疾病的情绪反应方面,肾脏替代疗法之间没有观察到差异。
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EMOTIONAL REPERCUSSIONS AND QUALITY OF LIFE IN CHILDREN AND ADOLESCENTS UNDERGOING HEMODIALYSIS OR AFTER KIDNEY TRANSPLANTATION
ABSTRACT Objective: To investigate the emotional repercussions and quality of life (QOL) associated with end-stage kidney disease (ESKD) in children and adolescents undergoing hemodialysis or a kidney transplant (TX). Methods: We conducted a quantitative-qualitative study. 48 children and adolescents with ESKD were interviewed; half of them underwent hemodialysis treatment, and the other half had a kidney transplantation. Their respective 48 caregivers also participated in the study. The questionnaire involved both the Pediatric Quality of Life Inventory and a thematic story-drawing tool. An analysis of the QOL questionnaire’s results was done by comparing the sum of points between groups and the theme-based story-drawing consisted of interpreting the data contained in the material using Freudian and Lacanian theories. Results: In the QOL questionnaires, the total score was higher in the transplanted patients and in their caregivers, suggesting a perception of better QOL after kidney transplantation. In the specific aspects of the questionnaire, physical capacity was considered superior by children who underwent transplants and their caregivers. There were no differences between the groups in the emotional, social and school aspects. However, the caregivers of the patients who had a transplant perceived a significant difference in QOL in the school aspect. In the thematic story-drawings, emotional suffering in the two analyzed groups was evidenced regardless of the treatment. Conclusions: Despite the questionnaire results suggesting that transplantation does improve some aspects of QOL, there were no differences observed between kidney replacement therapies regarding the emotional repercussion of chronic kidney disease.
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来源期刊
Revista Paulista De Pediatria
Revista Paulista De Pediatria Medicine-Pediatrics, Perinatology and Child Health
CiteScore
2.30
自引率
0.00%
发文量
100
审稿时长
11 weeks
期刊介绍: The Revista Paulista de Pediatria publishes original contributions, case reports and review of clinical research with methodological approach in the areas of health and disease of neonates, infants, children and adolescents. The objective is to disseminate research with methodological quality on issues that comprise the health of children and adolescents. All articles are freely available online, via SciELO. Its abbreviated title is Rev. Paul. Pediatr., which should be used in bibliographies, footnotes and bibliographical references and strips.
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