{"title":"优酷网® 西班牙语作为自身免疫性肝炎患者的信息来源","authors":"C.E. Lombo-Moreno , O.M. Muñoz-Velandia , D.G. Fernández-Ávila , J.E. Barahona-Correa , H.C. Aranguren , F.A. Avila","doi":"10.1016/j.rgmx.2023.03.006","DOIUrl":null,"url":null,"abstract":"<div><h3>Introduction</h3><p>A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied.</p></div><div><h3>Aim</h3><p>Our aim was to describe the characteristics of the information about AH on YouTube®.</p></div><div><h3>Methods</h3><p>An analytic observational study evaluated videos in Spanish about AH available on YouTube®, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]).</p></div><div><h3>Results</h3><p>One hundred videos were included, 93% of which provided information from healthcare professionals (group<!--> <!-->1), and 7% of which reflected patient opinions (group<!--> <!-->2). There were differences in the median reliability (DISCERN: 4 vs 2, <em>P</em> <!-->≤<!--> <!-->.05) and comprehensiveness (4 vs 2, <em>P</em> <!-->≤<!--> <!-->.05) scores between groups, but equal overall quality (GQS 3 vs 2, <em>P</em> <!-->=<!--> <!-->.2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; <em>P</em> <!--><<!--> <!-->.001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations.</p></div><div><h3>Conclusion</h3><p>The majority of videos about AH in Spanish on YouTube® have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.</p></div>","PeriodicalId":51767,"journal":{"name":"Revista de Gastroenterologia de Mexico","volume":null,"pages":null},"PeriodicalIF":1.5000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0375090623000241/pdfft?md5=54f68ce5822462e7cbc3b797b89450ec&pid=1-s2.0-S0375090623000241-main.pdf","citationCount":"0","resultStr":"{\"title\":\"YouTube® en español como fuente de información para pacientes con hepatitis autoinmune\",\"authors\":\"C.E. Lombo-Moreno , O.M. Muñoz-Velandia , D.G. Fernández-Ávila , J.E. Barahona-Correa , H.C. Aranguren , F.A. Avila\",\"doi\":\"10.1016/j.rgmx.2023.03.006\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Introduction</h3><p>A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied.</p></div><div><h3>Aim</h3><p>Our aim was to describe the characteristics of the information about AH on YouTube®.</p></div><div><h3>Methods</h3><p>An analytic observational study evaluated videos in Spanish about AH available on YouTube®, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]).</p></div><div><h3>Results</h3><p>One hundred videos were included, 93% of which provided information from healthcare professionals (group<!--> <!-->1), and 7% of which reflected patient opinions (group<!--> <!-->2). There were differences in the median reliability (DISCERN: 4 vs 2, <em>P</em> <!-->≤<!--> <!-->.05) and comprehensiveness (4 vs 2, <em>P</em> <!-->≤<!--> <!-->.05) scores between groups, but equal overall quality (GQS 3 vs 2, <em>P</em> <!-->=<!--> <!-->.2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; <em>P</em> <!--><<!--> <!-->.001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations.</p></div><div><h3>Conclusion</h3><p>The majority of videos about AH in Spanish on YouTube® have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.</p></div>\",\"PeriodicalId\":51767,\"journal\":{\"name\":\"Revista de Gastroenterologia de Mexico\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S0375090623000241/pdfft?md5=54f68ce5822462e7cbc3b797b89450ec&pid=1-s2.0-S0375090623000241-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista de Gastroenterologia de Mexico\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0375090623000241\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"GASTROENTEROLOGY & HEPATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista de Gastroenterologia de Mexico","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0375090623000241","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"GASTROENTEROLOGY & HEPATOLOGY","Score":null,"Total":0}
YouTube® en español como fuente de información para pacientes con hepatitis autoinmune
Introduction
A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied.
Aim
Our aim was to describe the characteristics of the information about AH on YouTube®.
Methods
An analytic observational study evaluated videos in Spanish about AH available on YouTube®, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]).
Results
One hundred videos were included, 93% of which provided information from healthcare professionals (group 1), and 7% of which reflected patient opinions (group 2). There were differences in the median reliability (DISCERN: 4 vs 2, P ≤ .05) and comprehensiveness (4 vs 2, P ≤ .05) scores between groups, but equal overall quality (GQS 3 vs 2, P = .2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; P < .001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations.
Conclusion
The majority of videos about AH in Spanish on YouTube® have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.
期刊介绍：
La Revista de Gastroenterología de México es el órgano oficial de la Asociación Mexicana de Gastroenterología. Sus espacios están abiertos a los miembros de la Asociación como a todo miembro de la comunidad médica que manifieste interés por utilizar este foro para publicar sus trabajos, cumpliendo con las políticas editoriales que a continuación se mencionan. El objetivo principal de la Revista de Gastroenterología de México, es publicar trabajos originales del amplio campo de la gastroenterología, así como proporcionar información actualizada y relevante para el área de la especialidad y áreas afines. Los trabajos científicos incluyen las áreas de Gastroenterología clínica, endoscópica, quirúrgica y pediátrica.
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