从残疾人角度看卫生政策

IF 1.1 4区 医学 Q3 REHABILITATION Journal of Disability Policy Studies Pub Date : 2020-09-30 DOI:10.1177/1044207320956679
Sarah Smith, Jean P. Hall, Noelle K. Kurth
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引用次数: 1

摘要

残疾人被边缘化,在参与社会,包括政治参与和代表权方面面临障碍。虽然数据表明,残疾人的政治偏好与美国总人口相似,但很少有研究用残疾人自己的话来评估他们的健康政策观点。这项研究使用了2017年至2019年期间通过35次电话采访和484份来自全国代表性调查的开放式回复收集的定性数据,以分析残疾人希望政策制定者了解残疾人的医疗保健和医疗保险。结果显示,这些人对社会排斥和污名化的看法为他们想告诉决策者什么提供了信息。此外,残疾人在很大程度上支持《平价医疗法案》的特点,并将扩大或普及医疗保健视为一项人权或道德问题。
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Perspectives on Health Policy From People With Disabilities
People with disabilities are marginalized and face barriers to participation in society, including political participation and representation. While data indicate that people with disabilities have similar political preferences to the overall U.S. population, little research has been conducted to assess the health policy views of people with disabilities in their own words. This study uses qualitative data collected between 2017 and 2019 via 35 telephone interviews and 484 open-ended responses from a nationally representative survey to analyze what people with disabilities would like policymakers to know about health care and health insurance for people with disabilities. Results reveal that this population’s perceptions of social exclusion and stigma inform what they would like to tell policymakers. In addition, people with disabilities were largely supportive of Affordable Care Act features and framed expanded or universal access to health care as a human right or a moral issue.
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来源期刊
CiteScore
3.20
自引率
0.00%
发文量
25
期刊介绍: The Journal of Disability Policy Studies addresses compelling, variable issues in ethics, policy, and law related to individuals with disabilities. A major focus is quantitative and qualitative policy research. Articles have implications in fields such as education, law, sociology, public health, family studies, medicine, social work, and public administration. Occasional special series discuss current problems or areas needing more in-depth research, for example, disability and aging, policy concerning families of children with disabilities, oppression and disability, school violence policies and interventions, and systems change in supporting individuals with disabilities.
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