从同情的角度看桥本甲状腺炎患者的经验

Zoi Portokalidou, Anna Huysse-Gaytandjieva, M. Peters
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摘要

桥本甲状腺炎(HT)是一种主要影响中年妇女的自身免疫性疾病。激素替代是最常见的治疗方法;然而,它只涉及甲状腺的功能,而不是自身免疫成分。因此,患者会经历持续的身体和心理症状,从而影响他们的生活质量。HT的病因尚不确定。初步证据表明,儿童时期的不良经历与成年后的自身免疫性疾病表现有关;因此,需要探讨早期不良事件对病程的影响。本文通过以同情为中心的治疗(CFT)中定义的同情视角,探讨了患者的早期生活事件和日常经历。在这项研究中,九名参与者接受了访谈,并使用主题分析对转录的访谈进行了分析。定性分析表明,患者表现出更多的心理困扰和缺乏他人的理解。发现了常见的经验和行为模式,例如重要的他人和自己之间缺乏同情心和从属关系。因此,将心理护理纳入HT的治疗过程将提高患者的幸福感和生活质量。特别是,培养同情心可能是一种很有前途的疾病预防和患者健康功能的策略。
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Experiences of Patients With Hashimoto Thyroiditis Through the Lens of Compassion
Hashimoto thyroiditis (HT) is an autoimmune disease affecting mainly middle-aged women. Hormonal replacement is the most common therapy; however, it tackles only the functionality of the thyroid and not the autoimmunity components. Thus, patients experience persistent somatic and psychological symptoms, thereby affecting their quality of life. The cause of HT remains uncertain. Primary evidence suggests that adverse experiences in childhood are associated with autoimmune disease manifestation in adulthood; therefore, the effect of early adverse events on disease course needs to be explored. This paper explored patients’ early life events and everyday experiences through the lens of compassion, as defined in compassion-focused therapy (CFT). In this study, nine participants were interviewed, and the transcribed interviews were analyzed using Thematic Analysis. Qualitative analysis indicated that patients exhibited increased psychological distress and a lack of understanding from others. Common patterns of experiences and behaviors were identified, such as the lack of compassion and affiliation between significant others and themselves. Therefore, including psychological care in the therapeutic process of HT would improve patients’ well-being and quality of life. In particular, cultivating compassion could be a promising strategy for disease prevention and the healthy functioning of patients.
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