社区慢性精神分裂症患者的生活经历

A. Rani, S. Prabhu, Thirumoorthy Ammapattian, Janaki Trichy, Sojan Antony
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摘要

背景和目的:精神分裂症是一种慢性严重的精神障碍,影响一个人在社区中成功运作的能力。当它与贫困、无家可归和失业等结构性和情境性压力相互作用时,可能会导致负面体验,使人容易受到虐待,甚至发展出韧性,或在障碍的限制下保持有意义的生活。该研究旨在了解被诊断为精神分裂症的个体如何定义和评估他们在社区中的生活体验;个人和环境优势,疾病对他们个人和社会生活的影响,他们在日常生活中遇到的挑战和障碍,以及他们如何克服这些挑战。方法:本研究从服务用户的角度关注生活体验,并从这些体验中获得意义。因此,将采用解释学现象学方法。将在四个月内进行深度访谈,以引出客户对其经历的叙述。使用ATLAS.ti.v.7对访谈进行转录、阅读和编码,以对每种情况下的主题方面进行聚类。将收集数据,直到达到饱和点,参与者来自不同年龄组、社会经济地位、种族和教育背景,居住在社区。含义:参与者的故事将讲述力量的来源、正常化的过程、描述歧视的例子、他们遇到的影响他们寻求帮助行为的社会和结构因素,以及这些因素如何在他们的日常生活中起到促进者和障碍的作用。调查结果表明有必要提供宣传服务,并通过建议和建议进行讨论。
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Lived Experiences of Persons with Chronic Schizophrenia Living in the Community
Background and Purpose: Schizophrenia is a chronic and severe mental disorder which impacts a person’s ability to successfully function in the community. When it interacts with structural and situational stress like poverty, homelessness and unemployment, it can lead to negative experiences and makes a person vulnerable to abuse or even develop resilience or retaining a meaningful life within the limitation of the disorder. The study aims to understand how individuals diagnosed with schizophrenia define and evaluate their experience of living in the community; personal and environmental strengths, impact of illness on their personal and social life, the challenges and barriers they meet in their day to day life and how they overcome those challenges. Methods: The study focuses on lived experiences and deriving meaning from those experiences from a service user perspective. Therefore, Hermeneutic phenomenological approach will be used. In-depth interviews will be conducted over the course of four months to elicit client’s narratives of their experiences. The interviews are transcribed, read and coded to cluster thematic aspects in each case by using ATLAS.ti.v.7. Data will be collected till saturation point is reached and participants are from various age-group, socio-economic status, ethnicity and educational background, living in the Community. Implication: Participants’ stories would narrate sources of strength, process of normalization, describing instances of discrimination, social and structural factors which they encounter affecting their help-seeking behaviour and how these factors act as facilitator and barriers in their day to day life. Findings would suggest the need for advocacy services which are discussed through recommendations and suggestions.
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