扩大新生儿血库筛查:发达国家的例子以及土耳其可以做些什么。

IF 1.1 Q2 MEDICINE, GENERAL & INTERNAL Intractable & rare diseases research Pub Date : 2022-05-01 DOI:10.5582/irdr.2022.01039
Çağlar Fidan, Hüseyin Örün, Aslı Begüm Alper, Çiğdem Naz Ünver, Ömer Can Şahin, Zeynep Uğurlu, R. Akdur, D. Taruscio
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引用次数: 3

摘要

新生儿血点筛查是一种典型的公共卫生干预措施,因为它是一种重要的二级预防措施,对罕见病的早期诊断和及时治疗具有公认的疗效和益处。在这项小型审查中,对12个国家的新生儿血库筛查(NBS)项目进行了检查,以确定筛查疾病/障碍的程度,从而为土耳其扩大新生儿筛查项目提出建议。从本质上讲,土耳其和11个选定国家在新生儿筛查方面的官方政策/国家计划或战略以及筛查的疾病/状况数量都得到了检查。脊髓性肌萎缩(SMA)筛查的现状也通过SMA NBS联盟进行了检查。此外,还审查了世界卫生组织和EURORDIS新生儿筛查指南。在Pubmed数据库中,遵循2008年1月1日至2021年12月1日Pubmed数据库中的搜索策略“(新生儿筛查[标题/摘要])OR(新生儿筛查程序[标题/文摘])OR”。建议纳入土耳其国家新生儿血库筛查计划的疾病将通过构建国际比较来评估Wilson和Jungner的最新标准。被检查的12个国家筛查的疾病/病症数量变化很大,从土耳其的5种到美利坚合众国纽约的51种不等。承认其他国家的计划,很明显,土耳其必须通过评估土耳其的流行病学数据、卫生工作者和基础设施来推进其计划,同时依靠更新的筛查标准。新生儿血库筛查计划应根据成本估算进行扩展,并从试点应用开始实施,认为合适的疾病/病症应纳入国家计划。
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Expanded newborn bloodspot screening: developed country examples and what can be done in Turkey.
Bloodspot screening in newborns is an exemplary public health intervention as it is essential secondary prevention with proven efficacy and benefit for the early diagnosis and prompt treatment of rare diseases. In this mini review, newborn bloodspot screening (NBS) programs of 12 countries were examined in terms of the extent of diseases/disorders screened to form recommendations for Turkey's expanded newborn screening program. Essentially, Turkey and 11 selected countries' official policies/ national programs or strategies in terms of newborn screening and the number of diseases/conditions screened were examined. The current status of spinal muscular atrophy (SMA) screening was also checked through the SMA NBS Alliance. In addition, WHO and EURORDIS guidelines for newborn screening were also reviewed. On the Pubmed database, following the search strategy "((newborn screening[Title/Abstract]) OR (newborn screening program[Title/Abstract])) OR (newborn blood spot screening[Title/Abstract])" in the PubMed database from 1 January 2008 to 1 December 2021. Diseases that will be recommended to be included in the Turkish national newborn bloodspot screening program will be presented by evaluating the updated criteria of Wilson and Jungner by constructing international comparisons. The number of diseases/disorders screened by the inspected 12 countries is eminently variable and ranges from 5 in Turkey to 51 in New York, United States of America (USA). Acknowledging the programs of other countries, it is evident that Turkey must advance its program by evaluating the epidemiological data in Turkey, the health workforce, and infrastructure while relying on the updated screening criteria. The newborn bloodspot screening program should be expanded based on the cost estimates and implemented starting with pilot applications and the diseases/disorders that are deemed appropriate should be included in the national program.
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来源期刊
Intractable & rare diseases research
Intractable & rare diseases research MEDICINE, GENERAL & INTERNAL-
CiteScore
2.10
自引率
0.00%
发文量
29
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