拉巴特ibn-sina医院多发性硬化症患者身体残疾与生活质量关系的研究

IF 1 Q4 PSYCHOLOGY Acta Neuropsychologica Pub Date : 2023-04-27 DOI:10.5604/01.3001.0053.5929
Ilias El Harchaoui, Aboubacar Abderemane, W. Regragui, Ahmed Omar Touhami Ahami
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引用次数: 0

摘要

多发性硬化症(MS)是一种影响中枢神经系统的慢性炎性疾病,是一种导致生活质量下降的慢性疾病。本研究的目的是评估多发性硬化症患者的身体残疾及其对生活质量的影响;目的是促进这种病理患者的治疗。本研究对摩洛哥拉巴特伊本西纳大学医院神经病学和神经遗传科的75例多发性硬化症患者进行了研究。收集数据的工具包括社会人口学和临床问卷、扩展残疾状态量表(EDSS)和生活质量SEP-59。在本研究的75例MS患者中,女性占77.3% (n = 58)(男女比为3.4)。人群平均年龄为38.2913.31岁,复发缓解最多,占65.3% (n=49),而56% (n=42)为已婚。我们确定平均EDSS为4.067 (SD为1.829),54.3% (n = 34)的患者表现为中度残疾(EDSS在4至6.5之间)。在角色限制中,心理体质、精力、整体生活质量、情绪幸福感、苦恼、性满足、性功能是影响生活质量最大的量表(SEP-59)。此外,EDSS与生活质量SEP-59显著相关。这项研究的结果表明,残疾与多发性硬化症患者的身心健康之间存在着密切的联系,这导致了他们生活质量的恶化。心理支持的参与是必不可少的。
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STUDY OF THE RELATIONSHIP BETWEEN PHYSICAL DISABILITY AND QUALITY OF LIFE OF PATIENTS WITH MULTIPLE SCLEROSIS IN THE IBN-SINA HOSPITAL IN RABAT
Multiple sclerosis (MS) is a chronic inflammatory disease affecting the central nervous system and is a chronic disease leading to a reduced quality of life. The objective of the study is the assessing of physical disability in patients with MS and its impact on QoL; the aim is to facilitate the treatment of patients with this pathology.75 patients with multiple sclerosis from the Neurology and Neurogenetic Department of the Ibn Sina University Hospital, Rabat, Morocco were studied. The data was collected using a kit composed of several tools including a sociodemographic and clinical questionnaire, the Expanded Disability Status Scale (EDSS), and quality of life SEP-59.Of the 75 MS patients in the study, females accounted for 77.3% (n = 58) (the female/male ratio being 3.4). The mean age of the population was 38.2913.31 years, Relapsing remitting is most present at 65.3% (n=49), while 56% (n=42) were married. We determined that the average EDSS was 4.067 (SD 1.829) with 54.3% (n = 34) of the patients displaying a moderate level of disability (EDSS between 4 and 6.5). We found that of the role limitations - mental and physique, energy, overall quality of life, emotional well-being, distress, sexual satisfaction, sexual function were the QoL scales affected most (SEP-59). Furthermore EDSS is significantly associated with QoL SEP-59.The results of this study indicate a strong link between disability and the physical and mental health of patients with multiple sclerosis, which causes a deterioration in their quality of life. The involvement of psychological support is essential.
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