镰状细胞病患儿照料者的生活经历：一项现象学研究

IF 0.9 4区心理学 Q3 FAMILY STUDIES American Journal of Family Therapy Pub Date : 2021-06-28 DOI:10.1080/01926187.2021.1941420

Francesca Owoo, Eman Tadros

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引用次数: 2

摘要

镰状细胞病(SCD)影响10万美国人，每365个黑人新生儿中就有一个。通过集中的谱系图和现象学，评估了SCD患者护理行为的代际传递。六名非裔美国主要护理人员讨论了他们在照顾患有SCD的儿童时的经历。出现的主题是:日常主要照顾者任务;主要照顾者挑战:认知应对策略和情绪应对策略、SCT/SCD知识和家族史;卫生保健系统的经验;社会对SCD的看法;以及对SCD诊断的最初反应。提供临床意义和未来的研究建议。

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The Lived Experiences of Caregivers of Children with Sickle Cell Disease: A Phenomenological Study

Abstract Sickle Cell Disease (SCD) affects 100,000 Americans and one out of every 365 Black births. With a focused genogram and phenomenology, the intergenerational transmission of caregiving behaviors experienced with SCD was evaluated. Six African American primary caregivers discussed their experiences when caring for a child with SCD. Themes emerged: daily primary caregiver tasks; primary caregiver challenges: cognitive coping strategies and emotional coping strategies, knowledge and family history of SCT/SCD; experiences with the health care system; societal perceptions of SCD; and initial reaction to the diagnosis of SCD. Clinical implications and future research recommendations are provided.

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来源期刊

American Journal of Family Therapy Multiple-

CiteScore

2.90

自引率

7.10%

发文量

期刊介绍： The American Journal of Family Therapy continues to be the incisive, authoritative, independent voice in an ever-changing field. You will find the latest techniques for treating families; theory on normal and dysfunctional family relationships; research on sexuality and intimacy; the effects of traditional and alternative family styles; community approaches to family intervention; and more.