Nursing care in adaptation to the role of informal caregivers of people with Parkinson’s disease

Introduction

Parkinson’s disease (PD) is catastrophic, chronic, and neurodegenerative. In advanced stage requires a permanent informal caregiver. The adaptation of the caregiver to their role is unknown, a fundamental aspect to guarantee the quality of care.

Objective

Prepare a healthcare proposal with standardized language to promote the adaptation of informal caregivers of Parkinson’s patients to their social role.

Methods

Two-phase study: Literature review and preparation of a Care Proposal. Search in Proquest, Scielo, Scient Direct, Pubmed, and Google Scholar databases, in English, Spanish and Portuguese languages, for the last five years. Descriptors: Parkinson’s disease, Chronic disease, caregivers, adaptation, nursing process. The proposal articulates the Calixta Roy adaptation Model with the Nursing Process using NANDA-NOC-NIC taxonomy.

Results

Few publications on coping and adaptation of caregivers and on the Nursing Process to caregivers using standardized language. Committed adaptation modes: Role function and Self-concept. Relevant nursing diagnoses: Tiredness of the caregiver role, Interruption of family processes, Impairment of social interaction, Ineffective relationship, Compromised family coping, Willingness to improve self-concept, Risk of low situational self-esteem, and Body image disorder. Two NOC outcomes and three NIC interventions were linked for each diagnosis.

Conclusions

The articulation of the Calixta Roy Adaptation Model with the standardized language NANDA-NOC-NIC is an innovative contribution to the disciplinary and professional development of Neurological and Community Nursing. The proposal makes it possible to monitor the levels of adaptation of the informal caregiver and intervene in a timely manner.