瑞典癌症姑息患者首选死亡地点与实际死亡地点的前瞻性研究。

Jonas Nilsson, Stefan Bergström, Hampus Hållberg, Anders Berglund, Michael Bergqvist, Georg Holgersson
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引用次数: 0

摘要

背景:癌症患者的死亡地点是临终关怀的一个重要方面。然而,关于可能影响癌症患者首选和实际死亡地点的因素以及患者是否在首选死亡地点死亡的研究很少。在这项研究中,我们旨在调查癌症姑息性患者的首选和实际死亡地点,以及影响这些变量的因素。方法:2019年至2022年间,被诊断为癌症并入住瑞典三个城市的姑息治疗团队的患者被要求参与。参与者完成了一份收集社会人口统计数据和首选死亡地点的问卷调查。纳入时对年龄、性别和癌症类型的进一步数据进行了整理,并记录了截至2023年5月5日的实际死亡地点。结果:本研究纳入242例患者。大多数(79%)患者希望在家中死亡,而家中是76%患者的实际死亡地点。当死亡地点由患者单独决定时,75%的患者选择了家,而与亲属共同决定时,这一比例为96%,具有统计学意义(p=0.0037)。对于想在家中死亡的患者,80%的患者实际上死于家中,亚组之间的差异不显著。结论:瑞典队列中大多数姑息性癌症患者更倾向于在家中死亡。让亲属参与决策可能会影响首选死亡地点,但需要更大规模的研究来全面评估不同亚组患者中影响首选和实际死亡地点的因素。
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Prospective Study of Preferred Versus Actual Place of Death Among Swedish Palliative Cancer Patients.

Background: The place of death of cancer patients is an important aspect of end-of-life care. However, little research has been conducted regarding factors that may influence the preferred and actual place of death in cancer patients and whether the patients die at their preferred place of death. In this study, we aimed to investigate the preferred and actual place of death for palliative cancer patients, and factors influencing these variables. Methods: Patients diagnosed with cancer and admitted to a palliative care team across three Swedish cities between 2019 and 2022 were asked for participation. Participants completed a questionnaire capturing sociodemographic data and preferred place of death. Further data regarding age, sex, and cancer type were collated at inclusion, and the actual place of death recorded for those deceased by 5-May-2023. Results: The study included 242 patients. A majority (79%) wanted to die at home which was the actual death location for 76% of the patients. When the place-of-death decision was made by the patient alone, 75% chose home, compared to 96% when decided jointly with relatives-a statistically significant variation (p = 0.0037). For the patients who wanted to die at home, 80% actually died at home, with insignificant disparities among subgroups. Conclusions: Most palliative cancer patients in this Swedish cohort preferred and achieved death at home. Involving relatives in decision-making may influence the preferred place of death, however larger studies are needed to comprehensively assess factors affecting the preferred and actual place of death in different subgroups of patients.

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