当一个17岁的女孩被诊断为肌痛性脑脊髓炎:一个来自瑞典卫生保健系统的案例研究-家长的观点

E. B. Horwitz, J. Axelsson, O. Polo, Leif Widebert, T. Theorell, Anabelle Paulino, D. Ullman, Jonas Bergquist
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引用次数: 0

摘要

这个案例研究展示了病人的母亲(她是一名音乐和医学研究人员)在她17岁的女儿被诊断患有ME(肌痛性脑脊髓炎),也被称为慢性疲劳综合征(CFS)时探索的不同策略。ME在全球和瑞典人群中没有得到广泛认可,在医疗保健领域,没有标准化的推荐治疗方法,部分原因是缺乏已发表的循证研究。本案例研究旨在深入了解瑞典医疗保健系统的运作方式,以及其中不同的诊所和医院如何运作和相互联系;以及这些因素如何影响15个月治疗后的健康状况。
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When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective
This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect; and how these contribute to health outcomes after 15 months of treatment.
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