慢性阻塞性肺病患者饮食相关挑战的负担:谁在乎?

Dorthe Sørensen, Anna Rottensten Wieghorst, Johanne Andersen Elbek, C. A. Mousing
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摘要

由于营养状况是COPD预后和结局的一个指标,因此研究如何通过了解与膳食相关的挑战来改善营养摄入是相关的。目的:探讨慢性阻塞性肺病患者在面对与饮食有关的挑战时的行为和经历。方法:本研究采用现象学解释学方法,基于参与者观察和在二级和初级卫生保健机构的非正式谈话。从2018年8月到2019年2月,在丹麦呼吸内科和患者的私人家中完成了与14名患者34小时的饮食相关观察和非正式谈话。使用Spradley和Ricoeur对实证数据进行了收集和分析。结果:这项研究揭示了缺乏对用餐情况的尊重,并表明在面对与用餐相关的挑战时,职业责任是不明确的。患者根据食物的质地而不是他们的口味偏好来选择菜肴,这可能会限制他们的营养摄入。该研究表明,患者在表达他们对营养和饮食相关情况的需求时犹豫不决,这使得许多无法用语言表达的挑战无人关注。结论:膳食相关挑战的总体负担可能导致营养摄入减少,从而增加营养不良的风险。需要进一步的研究来衡量所确定的与饮食有关的挑战的普遍性,并制定能够适应这些挑战的干预措施。
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The burden of meal-related challenges in patients with COPD: Who cares?
Introduction: As nutritional status is an indicator of both prognosis and outcome in relation to COPD, it is relevant to investigate how to improve nutritional intake through a knowledge of meal-related challenges. Aim: To investigate the behaviour and experiences of individuals diagnosed with COPD when faced with challenges in meal-related situations. Methods: This study used a phenomenological hermeneutic approach based on participant observations and informal conversations in both secondary and primary health care settings. From August 2018 until February 2019, 34 hours of meal-related observations and informal conversations with 14 patients were completed at a Danish Department of Respiratory Medicine and in patients’ private homes. The empirical data was collected and analysed using Spradley and Ricoeur. Results: This study reveals a lack of respect for the meal situation and shows that the professional responsibility in the face of meal-related challenges is unclear. Patients select dishes based on the texture of the food instead of on their taste preferences, which may limit their nutritional intake. The study shows that patients are hesitant to communicate their needs about nutrition and meal-related situations, which leaves a number of non-verbalised challenges unattended. Conclusion: The overall burden of meal-related challenges poses a risk of decreasing nutritional intake, thereby increasing the risk of undernutrition. Further research is needed to measure the prevalence of the meal-related challenges identified, and to develop interventions that can accommodate these.
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