Najrani白癜风患者对其疾病的信念、知识和看法

Abdul Saeed
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摘要

背景:白癜风是一种常见的获得性色素脱失性皮肤病,影响世界人口的0.5-1%。患者对白癜风的看法可能会对他们的疾病管理产生积极和/或不利的影响。目的:探讨在纳吉兰大学医院就诊的白癜风患者对白癜风的认知和信念,并探讨影响其认知的潜在因素。材料与方法:在2018年5月至2019年11月期间对白癜风患者进行了一项横断面研究,包括60名年龄在12岁以上的患者。对白癜风患者进行阿拉伯文形式的疾病认知问卷调查,获取疾病详细信息。结果:共纳入60例白癜风患者(女性36例,男性24例),88%和33%的受访者认为命运和邪眼是白癜风的病因。大约45%、30%和20%的人分别认为压力、遗传和免疫改变是他们患病的原因。大约50%的人认为他们的疾病对他们的生活有重大影响,58%的人认为白癜风严重影响了别人对他们的看法;这在女性患者中更为常见。大约90%的人认为他们的病不会传染,58%的人认为他们了解自己的病。大约75%和45%的人分别因为他们的疾病而感到压力抑郁;这在女性中更为常见,并且在教育水平上是独立的。结论:白癜风患者普遍存在误解和消极态度,导致生理应激、焦虑和抑郁。
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Beliefs, knowledge, and perceptions of Najrani vitiligo patients regarding their illness
Background: Vitiligo is a common acquired depigmentary skin disease that affects 0.5–1% of the world population. Patient’s thought about vitiligo can result in positive and/or adverse implications for the management of their disease. Objective: This study sought to explore the knowledge and beliefs held by vitiligo patients attending Najran University Hospital and to explore the potential factors that might influence such believes. Materials and Methods: A cross-sectional study among patients with vitiligo was carried out between May 2018 and November 2019 included 60 patients aged over 12 years. The illness perception questionnaire in Arabic form administered to vitiligo patients and illness details was obtained. Results: In total, 60 (36 females, and 24 males) patients were included in the study, it was believed that fate, and evil eyes were the cause of vitiligo by 88% and 33% of the respondents, respectively. About 45%, 30%, and 20% believed in stress, hereditary, and altered immunity as a cause of their illness, respectively. About 50% believed that their illness had a major effect on their lives and 58% believed that vitiligo had strongly affected the way others see them; this was more common in female patients. About 90% believed that their illness was not contagious, 58% believed that they do understand their illness. About 75% and 45% reported feeling stress depressed, respectively, because of their disease; this was more common in females and independent on the educational level. Conclusions: Our results show that misunderstanding and negative attitudes are common among vitiligo patients which led to physiological stress, anxiety, and depression.
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