印度东部HIV/AIDS感染者因污名而产生压力的防御机制研究:单一中心经验

Ayantika Mukherjee, S. Lahiry, A. Mukherjee, Shouvik Choudhury, Rajasree Sinha
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引用次数: 6

摘要

目的:探讨HIV/AIDS感染者(PLWHA)的污名化模式,并评估其在生活质量(QOL)评估中所采取的应对策略。方法:在描述性横断面研究设计的背景下,采用“滚雪球抽样”的方法对在加尔各答医学院HIV(人类免疫缺陷病毒)门诊就诊的PLWHA患者(n = 120)进行研究。一个简短的半结构化访谈时间表被用来引出社会人口统计数据。病耻感采用4分制(40项)进行评估。使用WHOQOL-BREF(世界卫生组织生活质量)量表(26项)评估生活质量。结果:96.7%的患者报告有压力。耻辱感主要发生在社会家庭背景下。害怕被污名化的比例比实际面临污名化的要高得多(69.2% vs 27.5%;p < 0.01)。生活质量与心理领域污名内化呈负相关(P < 0.01)。经历过真正耻辱的比例(女性vs男性:79% vs 74%)的生活质量在中等以上。确定了多种防御机制。“利他主义”、“期待”和“幽默”是最受欢迎的防御策略。然而,这种应对策略似乎是自学成才的,在管理感知到的耻辱方面只有有限的帮助。结论:HIV/AIDS感染者应避免内化污名感,积极参与社会活动,努力改善生活质量。
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Study on Defense Mechanisms to Cope With Stress Due to Stigma Among People Living With HIV/AIDS Reported in Eastern India: A Single Center Experience
Aim: To explore the stigmatizing pattern in people living with HIV/AIDS (PLWHA) and assess coping strategies adopted for quality of life (QOL) appraisal. Methods: In the background of a descriptive, cross-sectional research design, PLWHA attending HIV (human immunodeficiency virus) outpatient clinic at Medical College, Kolkata (n = 120) were enrolled through “snowball sampling.” A brief semistructured interview schedule was used to elicit data on socio-demographics. Stigma was assessed using a 4-point scale (40-item). Quality of life was assessed using WHOQOL-BREF (World Health Organization Quality-of-Life) scale (26-item). Results: About 96.7% reported being stressed. Stigma was mostly confronted in socio-familial context. Fear of being stigmatized was much higher compared with those who actually faced stigma (69.2% vs 27.5%; P < .01). Quality of life negatively correlated with internalizing of stigma in the psychological domain (P < .01). Proportion experiencing actual stigma (women vs men: 79% vs 74%) experienced an above moderate QOL. Multiple defense mechanisms were identified. “Altruism,” “Anticipation,” and “Humor” were the most preferred defense strategies. However, such coping strategies appeared to be self-taught and only modestly helpful in managing perceived stigma. Conclusions: People living with HIV/AIDS should avoid internalizing stigmatized feeling and engage in social activities to work toward a better QOL.
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期刊介绍: Indian Association of Clinical Medicine is an academic body constituted in the year 1992 by a group of clinicians with the main aim of reaffirming the importance of clinical medicine in this era of high-tech diagnostic modalities. There is no doubt that modern investigational methods have contributed a lot to the present day medical practice but that does not render clinical acumen and examination less important. The art and science of clinical medicine helps up to make proper and judicious use of investigations and not these be the sole basis of our practice. That is the basic idea behind this ''Association''. We presently have members and fellows of the association from all over the country. In August, 2002 the body was registered as "Indian Association of Clinical Medicine" by the Registrar of Societies, Delhi.
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