影响儿童活体肝移植供体生活质量的因素:一种定性方法

Yaqi Huang, Yuexian Shi, Yue Zhao
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引用次数: 0

摘要

目的探讨儿童活体肝移植供者的生活经历,探讨影响其生活质量的因素。方法采用现象学-解释学方法进行定性研究。采用半结构化访谈法对12例在世亲属肝移植供者进行面对面访谈,采用7步Colaizzi法进行数据分析。结果共分为4个领域和9个子领域,分别是身体障碍(疼痛、不适和生理变化)、不确定感(受助者依赖敏感、自我怀疑和家庭压力下的困惑)、角色冲突(患者-照顾者和家庭-社会)和满足与感恩(愿意牺牲、活在当下和受益于社会资金)。结论不同献血者的生活质量水平差异较大。躯体障碍、不确定感、角色冲突、满足和感激是影响儿童活体相关移植供体生活质量的主要因素。关键词:儿童;肝移植;住捐赠;生活质量
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Influencing factors of quality-of-life for donors undergoing pediatric living related liver transplantation: a qualitative approach
Objective To explore the life experiences of donors undergoing pediatric living related liver transplantation and elucidate it’s the influencing factors of quality-of-life. Methods A qualitative study was performed with a phenomenological-hermeneutic approach. Twelve living related liver transplantation donors were face-to-face interviewed by a semi-structured interview and 7-step Colaizzi method was applied for data analysis. Results Four domains and 9 sub-domains were summarized as follows: body disturbance (pain, discomfort & physical changes), sense of uncertainty (recipient-dependent sensitive, self-doubt & confusion under family pressure), role conflict (patient-carer & family-social) and contentment & gratitude (willing to sacrifice, living in the present & benefiting from social funds). Conclusions The levels of quality-of-life vary greatly in different donors. Body disturbance, sense of uncertainty, role conflict, contentment and gratitude are the major influencing factors of quality-of-life for donors undergoing pediatric living related transplantation. Key words: Child; Liver transplantation; Lving donor; Quality of life
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