青春期女性癫痫患者护理过渡期的管理

IF 0.2 Q4 PEDIATRICS Journal of Pediatric Epilepsy Pub Date : 2020-09-23 DOI:10.1055/s-0040-1716866
Roohi Katyal, D. Singhal
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引用次数: 0

摘要

从儿童癫痫诊所到成人医疗保健的过渡往往是一个具有挑战性的过程,特别是由于相关指南的可用性有限。考虑到在这个年龄组中看到的无数生理和心理社会变化,它在特定的人群亚群(如青春期女性)中具有更重要的意义。由于癫痫发作时激素的变化(双侧癫痫),女性癫痫患者面临着独特的挑战。此外,癫痫发作和抗癫痫药物会影响月经、妊娠和哺乳期。这些患者出现精神健康问题的风险较高,因此应谨慎地进行密切随访,并进行适当的精神障碍筛查。导致护理过渡不良的几个因素包括多学科设置和社会支持服务的有限可用性,延迟转诊到专家,以及治疗不依从的趋势。在这篇综述中,我们讨论了目前青少年女性癫痫患者护理转变的情况,并根据我们的亚专科临床经验探索改善途径。我们阐述了跨学科护理的价值,包括神经学家/癫痫学家、初级保健医生、妇产科医生和相关的社会服务,并强调共同决策、有效的避孕方法、孕前咨询、骨骼健康的维护和提高生活质量。
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Managing Transition of Care in Adolescent Females with Epilepsy
Abstract Transition of care from pediatric epilepsy clinics to adult health care is often a challenging process, especially due to limited availability of relevant guidelines. It carries even more significant implications in specific population subsets such as adolescent females, given a myriad of physiological as well as psychosocial changes seen in this age group. Women with epilepsy face distinct challenges because of hormonal variations on seizures (catamenial epilepsy). Furthermore, seizures and antiepileptic drugs impact menstruation, pregnancy, and lactation. These patients are at a higher risk for developing mental health problems, and a close follow-up with appropriate screening for psychiatric disorders is prudent. Several factors contributing to poor transition of care include limited availability of a multidisciplinary set-up and social-support services, delayed referral to specialist(s), and tendency for treatment nonadherence. In this review, we discuss the current scenario of transition of care in adolescent females with epilepsy and explore avenues for improvement based on our subspecialty clinic experiences. We illustrate the value of interdisciplinary care proactively involving neurologists/epileptologists, primary care physicians, obstetricians–gynecologists, and relevant social services and emphasize shared decision-making, effective contraceptive methods, preconceptual counseling, maintenance of bone-health, and enhanced quality of life.
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来源期刊
自引率
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发文量
21
期刊介绍: The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.
期刊最新文献
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