迈向对母性的理解:自闭儿童母亲的照顾过程。

B. Shu, H. Hsieh, S. Hsieh, S. M. Li
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引用次数: 20

摘要

本研究旨在探讨自闭症儿童母亲的照顾经验。在这一定性研究中,对有自闭症儿童的母亲进行了焦点小组和深度访谈,以揭示她们养育经验的本质。采用扎根理论的持续比较方法对主题进行数据分析。出现了三个主题:(a)对残疾儿童的看法;(b)她们对照顾这个孩子的特殊关注;(c)通过理解母性的意义来恢复和发现自我。研究结果可以帮助卫生工作者更深入地了解患有自闭症儿童的母亲的护理过程,并帮助母亲找到护理的意义和她们的福祉。
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Toward an understanding of mothering: the care giving process of mothers with autistic children.
The purpose of this study was to explore the care-giving experience of mothers with autistic children. In this qualitative study, a focus group and in-depth interviews were conducted with mothers with an autistic child to uncover the nature of their mothering experience. Data were analyzed for themes with the constant comparison approach of grounded theory. Three themes emerged: (a) the perception about their disabled child; (b) their special concerns for caring for this child and (c) reclaiming and discovering self through understanding the meaning of mothering. The results can help health workers to gain a deeper understanding of the care-giving process for mothers with an autistic child and facilitate mothers to find the meaning of care and their well-being.
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