从等待到准备:癌症患者康复观点的质性可行性研究

A. Beck, H. V. Thaysen, C. Soegaard, J. Blaakær, L. Seibæk
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引用次数: 8

摘要

背景:本研究的目的是调查癌症患者对预先定义的、以家庭为基础的、多模式的康复方案的看法,特别关注可行性和可接受性。患者与方法:采用半结构化访谈法,对15例行完全细胞减缩手术(CRS)伴或不伴腹腔热化疗(HIPEC)的结直肠或卵巢源性腹膜癌患者进行访谈。采用马尔特鲁德的系统文本浓缩原理对数据进行分析。结果:患者对家庭康复持积极态度,主要是因为有机会影响康复,但也因为它可以分散他们的注意力,从消极的想法,因为他们可以获得支持。但是,他们不会无条件地遵守方案,并且确定了遵守方案的重大障碍。这些因素包括缺乏信仰、日常生活、偏好和限制。结论:患者对以家庭为基础的康复的观点提供了关于坚持计划障碍的新知识。研究结果强调了开发以家庭为基础的多模式康复计划的复杂性,该计划不仅可以提高功能能力,而且还与患者相关,并与他们的日常生活需求保持一致。
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From waiting to preparing: A qualitative feasibility study of cancer patients’ perspectives on prehabilitation
Background: The aim of the study was to investigate cancer patients’ perspectives on a pre-defined, home-based, multimodal prehabilitation programme with particular attention to feasibility and acceptability. Patients and methods: Fifteen patients with peritoneal carcinomatosis of colorectal or ovarian origin undergoing complete cytoreductive surgery (CRS), with or without hyperthermic intraperitoneal chemotherapy (HIPEC), participated in semi-structured interviews. Malterud’s principles of systematic text condensation were used to analyse the data. Results: Patients had a positive attitude towards home-based prehabilitation, primarily because of the opportunity to influence recovery, but also because it could distract their attention from negative thoughts and because they could gain support. However, they would not follow the programme unconditionally and significant barriers to adherence were identified. These included lack of belief, everyday life, preferences and restrictions . Conclusion: Patients’ perspectives on home-based prehabilitation contribute new knowledge concerning barriers to adherence to a programme. The findings underscore the complexity of developing a home-based, multimodal prehabilitation programme that not only enhances functional capacity, but is also experienced relevant to the patients and aligns with the demands of their everyday lives.
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