自闭症谱系障碍儿童的医疗和社会护理问题

R. Terletskaya, A. V. Lashkova, V. Chernikov, I. Vinyarskaya, L. Kuzenkova
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引用次数: 1

摘要

目的是通过对自闭症谱系障碍儿童的合法代表进行的社会学调查,确定他们在生活中面临的问题,从而进一步改善医疗和社会援助的提供。材料和方法。对ASD未成年人(1 ~ 11岁)的法定代理人进行调查。结果。通过对自闭症儿童家庭生活条件的研究、父母对其健康状况的评估、在残疾登记、提供医疗和康复援助以及医疗和社会支持问题中出现的问题,可以确定这类儿童在现代医疗和社会条件下的状况。主要问题是在残疾登记期间收集了大量文件,检查当天等待时间长,医疗和社会检查局的位置偏远,缺乏专科医生,在进行个别康复方案时缺乏对儿童个人需求的考虑,需要联系各个机构和部门,缺乏医疗和社会援助,侵犯向自闭症儿童提供医疗服务的权利。结论。有必要扩大对儿童自闭症发病因素的研究,制定预防和早期诊断策略,消除污名,并在社会上开展教育工作。
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Problems of medical and social care for children with autism spectrum disorders
The aim is to identify, through a sociological survey of legitimate representatives of children with autism spectrum disorders (ASD), the problems that they face in their lives, to further improve the provision of medical and social assistance. Materials and methods. A survey of legal representatives of ASD minors (aged 1–11 years) was conducted. Results. The study of the living conditions of a child with autism in the family, the assessment by parents of his state of health, problems arising in the registration of disability, in the provision of medical and rehabilitation assistance and issues of medical and social support made it possible to determine the situation of this group of the child population in modern medical and social conditions. The main problems were the collection of a large number of documents during the registration of disability, the long wait for the day of examination, the remoteness of the location of the medical and social examination bureau, the lack of specialist doctors, the lack of consideration of the individual needs of the child when conducting individual rehabilitation programs, the need to contact various institutions and departments, the lack of medical and social assistance, violation of rights in the provision of medical services to a child with autism. Conclusion. It is necessary both to expand research aimed at studying etiopathogenetic factors and developing strategies for the prevention and early diagnosis of autistic disorders in childhood, destigmatization, and educational work in society.
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来源期刊
Russian Journal of Pediatric Hematology and Oncology
Russian Journal of Pediatric Hematology and Oncology Medicine-Pediatrics, Perinatology and Child Health
CiteScore
0.40
自引率
0.00%
发文量
36
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