韩国慢性荨麻疹患者未满足的需求调查

IF 4.1 2区 医学 Q2 ALLERGY Allergy, Asthma & Immunology Research Pub Date : 2023-11-01 DOI:10.4168/aair.2023.15.6.837
Joonhong Min, Young Her, Ki Won Moon, Ji In Park, Sunmi Kim, Eun-Hee Cho, Kyu-Hyoung Lim, Jae-Woo Kwon
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引用次数: 0

摘要

慢性荨麻疹(CU)是一种常见的疾病,疾病负担高,对生活质量有显著的负面影响。许多患者治疗不足,临床医生对管理策略的认识较低。本研究旨在从患者的角度提高对CU的认识,包括疾病负担和当前医疗保健系统的使用。到我们转诊医院接受CU治疗的成年患者完成了关于人口统计学、CU临床特征、CU对日常生活的影响、未满足需求和医疗服务使用史的自我报告问卷。本自我报告调查共纳入127名参与者(女性占57.0%;平均年龄42.0±13.6岁;平均CU病程1.8±3.4年);51.6%的患者在日常生活中经常出现CU不适,其中44.1%的患者对药物治疗反应良好。超过一半的受访者表示情绪低落和焦虑。虽然46.4%的受访者报告在用药期间荨麻疹完全消失,但只有10%的受访者对初级保健医院提供的CU管理感到满意。不满意的主要原因是不知道CU的原因(68.4%)。总共有55%的患者在来我们转诊医院之前去过2家或更多的医院,6.3%的患者尝试过偏方。总之,大多数患者报告CU没有得到充分控制。因此,除了适当的药物治疗外,还需要了解CU的病因、长期治疗计划、用药安全性和预期预后等信息,以满足患者的需求。
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Unmet Needs of Patients With Chronic Urticaria: A Survey in Korea.

Chronic urticaria (CU) is a common problem with a high disease burden that has a significant negative impact on quality of life. Many patients are undertreated, and awareness of management strategies is low among clinicians. The present study aimed to improve understanding of CU from the patients' perspective, including the disease burden and current healthcare system use. Adult patients who presented to our referral hospital for CU treatment completed self-report questionnaires about demographics, clinical characteristics of CU, the impact of CU on daily life, unmet needs, and the history of medical service usage. This self-report survey included 127 participants (females, 57.0%; mean age, 42.0 ± 13.6 years; mean CU duration, 1.8 ± 3.4 years); 51.6% reported frequent discomfort with CU in daily life, including 44.1% of those who reported a good response to medication. More than half of the respondents reported a depressed mood and anxiety. Although 46.4% of the respondents reported that urticaria completely disappeared while on medication, only 10% were satisfied with the CU management provided by primary care hospitals. The principal cause of dissatisfaction was that they did not know the cause of CU (68.4% of patients). In total, 55% of the patients visited 2 or more hospitals before presenting to our referral hospital and 6.3% had tried folk remedies. In conclusion, most patients report that CU is not adequately controlled. Therefore, in addition to appropriate medication, information on the cause of CU, long-term treatment plan, medication safety, and expected prognosis is required to meet patients' needs.

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来源期刊
CiteScore
6.10
自引率
6.80%
发文量
53
审稿时长
>12 weeks
期刊介绍: The journal features cutting-edge original research, brief communications, and state-of-the-art reviews in the specialties of allergy, asthma, and immunology, including clinical and experimental studies and instructive case reports. Contemporary reviews summarize information on topics for researchers and physicians in the fields of allergy and immunology. As of January 2017, AAIR do not accept case reports. However, if it is a clinically important case, authors can submit it in the form of letter to the Editor. Editorials and letters to the Editor explore controversial issues and encourage further discussion among physicians dealing with allergy, immunology, pediatric respirology, and related medical fields. AAIR also features topics in practice and management and recent advances in equipment and techniques for clinicians concerned with clinical manifestations of allergies and pediatric respiratory diseases.
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