斯威士兰参与式健康研究中同意决定的结构性影响。

Michelle R Brear, Pinky N Shabangu, Karin Hammarberg, Jane Fisher
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引用次数: 0

摘要

认识到结构性因素影响参与决策,并有可能强迫参与,最近出现在研究伦理文献。需要有经验证据来阐明"结构性"强迫和影响的性质,以便通过自愿知情同意最大限度地尊重自主权。我们提出了关于社区共同研究人员在斯威士兰参与式健康研究中设计和实施人口和健康调查同意程序的经验的民族志数据的研究结果。根据布迪厄关于多种类型资本/权力的社会学理论,我们的研究结果详细说明了对研究参与决策的结构性影响,强调了同意互动中固有的权力负载动力学,并建议为了达到最佳伦理,研究伦理原则和实践应该考虑并解释结构权力动力学。
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Structural Influences on Consent Decisions in Participatory Health Research in Eswatini.

Recognition that structural factors influence participation decisions and have potential to coerce participation, emerged relatively recently in research ethics literature. Empirical evidence to elucidate the nature of "structural" coercion and influence is needed to optimise respect for autonomy through voluntary informed consent. We present findings from ethnographic data about community co-researchers' experiences designing and implementing demographic and health survey consent procedures in participatory health research in Eswatini. Informed by Bourdieu's sociological theory of multiple types of capital/power, our findings detail structural influences on research participation decisions, highlight the inherently power-laden dynamics of consent interactions, and suggest that to be optimally ethical, research ethics principles and practices should consider and account for structural power dynamics.

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来源期刊
CiteScore
3.50
自引率
7.70%
发文量
30
审稿时长
>12 weeks
期刊介绍: The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
期刊最新文献
Comparison of Instructions to Authors and Reporting of Ethics Components in Selected African Biomedical Journals: 2008 and 2017. How Making Consent Procedures More Interactive can Improve Informed Consent: An Experimental Study and Replication. An Example of a Clinical Research Ethics Committee in Türkiye: Types of Studies Analysed, Their Phases and Investigators. Decision-Making Capabilities of Artificial Intelligence Platforms as Institutional Review Board Members: Comment. Perceptions of the Research Integrity Climate in Egyptian Universities: A Survey Among Academic Researchers.
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