共同设计,共同学习和共同制作胰腺癌患者应用程序-“胰腺Plus”研究方案。

IF 2.2 Q2 HEALTH CARE SCIENCES & SERVICES mHealth Pub Date : 2023-01-01 DOI:10.21037/mhealth-22-48
Lorenzo Cobianchi, Francesca Dal Mas, Erica Pizzocaro, Marzia Tripepi, Giovanni Butturini
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引用次数: 2

摘要

背景:胰腺癌是一种复杂的恶性肿瘤,常导致不良预后。患者需要面对一个具有挑战性的治疗路径,这涉及到高度专业化的多学科专业人员。这种疾病的复杂性要求开发专用工具来支持患者的护理过程。在肿瘤治疗中,联合生产是一种有价值的策略,可以让患者了解他们的治疗过程,并采取相应的行动,以获得最佳的临床结果。方法:非营利组织uni胰腺积极推动胰腺癌治疗的最新进展,支持胰腺癌患者,与多学科专业人员合作,构思了一个全新的项目“胰腺+”,采用共同设计、共同学习和共同制作的路径,设计一个专门为胰腺癌患者设计的应用程序,以帮助他们在治疗和随访过程中。该应用程序是多方利益相关者参与项目的成果,提供专门针对胰腺癌疾病的健康信息和医疗建议。本文报告了研究方案,可用于针对不同条件的其他电子卫生工具的设计。讨论:该研究的成果将是一个应用程序,该应用程序将胰腺癌患者视为主要受益者,但可以收集并解决所有有意义的利益相关者的利益和需求,包括临床医生、研究人员、医疗保健和教育机构以及非营利协会。注册:考虑到学习类型,不需要注册。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Co-design, co-learning, and co-production of an app for pancreatic cancer patients-the "Pancreas Plus" study protocol.

Background: Pancreatic cancer is a malignant and complex tumor that often leads to an adverse prognosis. Patients need to face a challenging treatment path, which involves highly-specialized multidisciplinary professionals. The complexity of the disease requires the development of dedicated tools to support patients in their care journey. Co-production stands as a valuable strategy in oncological care to engage patients in understanding their care journey and behaving accordingly to get the best possible clinical outcome.

Methods: The non-profit association Unipancreas, active in promoting the latest advances in pancreatic cancer care and in supporting pancreatic cancer patients, has partnered with a multidisciplinary group of professionals to conceive the brand new program "Pancreas Plus" to employ a co-design, co-learning, and co-production path to design an app devoted to pancreatic cancer patients to assist them during their treatment and follow-up journey. The app, which is the outcome of a multi-stakeholder engagement project, offers health information and medical advice specifically tailored on the pancreatic cancer disease. The article reports the research protocol, which may be replicated for the design of other e-health tools focusing on different conditions.

Discussion: The study's output will be an app that sees the pancreatic cancer patient as the main beneficiary but which can gather and address the interests and needs of all meaningful stakeholders, including clinicians, researchers, healthcare and educational institutions, and non-profit associations.

Registration: Given the type of study, no registration is required.

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