临终关怀作为晚期癌症患者首选的死亡环境:土耳其一个被忽视的研究领域。

Ayşe Mine İşler, Buğra Yıldırım
{"title":"临终关怀作为晚期癌症患者首选的死亡环境:土耳其一个被忽视的研究领域。","authors":"Ayşe Mine İşler,&nbsp;Buğra Yıldırım","doi":"10.1080/15524256.2022.2094524","DOIUrl":null,"url":null,"abstract":"<p><p>In the context of end-of-life practices in Turkey, the researchers considered it important to reveal the need for hospice care in Turkey since the number of palliative care units is low and they do not meet the needs, hospice care services are absent, and intensive care units are misused in parallel with these deficiencies. The researchers addressed the subject with a phenomenological qualitative approach. The views of healthcare professionals and patient relatives who cared for terminal cancer patients. In the context of the environment of death preferences were of interest. The study was conducted in the city center of Manisa, one of the 30 metropolitan cities located in the western region of Turkey. Of the 23 participants, 18 were healthcare professionals working in the field of oncology, and five participants were primary caregivers who lost their loved ones with terminal cancer. The caregiver family members were the family members who provided care to the terminal cancer patient with their own means at home and accompanied the patient's treatment process, since there was no hospice care. A semi-structured interview guide was utilized for the in-depth interviews. Data were transcribed by the researchers and coded in MAXQDA 2020, subjected to thematic analysis, and divided into units of meaning. At the final stage of the study, the units of meaning were combined, and four basic themes were revealed: the conceptualization of the environment of death preferences, the problems caused by death in the hospital, the necessity of hospice care, and hospice care for caregivers. The study results demonstrated that hospice care was an essential need in Turkey, and the workload of hospitals would decrease, and hospital resources could be used efficiently in the presence of hospices. At the same time, it was understood that hospices were services making it easier for terminal cancer patients and their caregivers to face death with peaceful expectations.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"53-83"},"PeriodicalIF":1.6000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey.\",\"authors\":\"Ayşe Mine İşler,&nbsp;Buğra Yıldırım\",\"doi\":\"10.1080/15524256.2022.2094524\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>In the context of end-of-life practices in Turkey, the researchers considered it important to reveal the need for hospice care in Turkey since the number of palliative care units is low and they do not meet the needs, hospice care services are absent, and intensive care units are misused in parallel with these deficiencies. The researchers addressed the subject with a phenomenological qualitative approach. The views of healthcare professionals and patient relatives who cared for terminal cancer patients. In the context of the environment of death preferences were of interest. The study was conducted in the city center of Manisa, one of the 30 metropolitan cities located in the western region of Turkey. Of the 23 participants, 18 were healthcare professionals working in the field of oncology, and five participants were primary caregivers who lost their loved ones with terminal cancer. The caregiver family members were the family members who provided care to the terminal cancer patient with their own means at home and accompanied the patient's treatment process, since there was no hospice care. A semi-structured interview guide was utilized for the in-depth interviews. Data were transcribed by the researchers and coded in MAXQDA 2020, subjected to thematic analysis, and divided into units of meaning. At the final stage of the study, the units of meaning were combined, and four basic themes were revealed: the conceptualization of the environment of death preferences, the problems caused by death in the hospital, the necessity of hospice care, and hospice care for caregivers. The study results demonstrated that hospice care was an essential need in Turkey, and the workload of hospitals would decrease, and hospital resources could be used efficiently in the presence of hospices. At the same time, it was understood that hospices were services making it easier for terminal cancer patients and their caregivers to face death with peaceful expectations.</p>\",\"PeriodicalId\":45992,\"journal\":{\"name\":\"Journal of Social Work in End-of-Life & Palliative Care\",\"volume\":\"19 1\",\"pages\":\"53-83\"},\"PeriodicalIF\":1.6000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Social Work in End-of-Life & Palliative Care\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1080/15524256.2022.2094524\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"SOCIAL WORK\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Social Work in End-of-Life & Palliative Care","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1080/15524256.2022.2094524","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"SOCIAL WORK","Score":null,"Total":0}
引用次数: 0

摘要

在土耳其临终实践的背景下,研究人员认为揭示土耳其对临终关怀的需求是很重要的,因为姑息治疗单位的数量很低,它们不能满足需求,临终关怀服务缺失,重症监护病房与这些缺陷同时被滥用。研究人员用现象学的定性方法来处理这个问题。照顾晚期癌症病人的医护人员及病人家属的意见。在死亡环境的背景下,人们对死亡偏好很感兴趣。这项研究是在土耳其西部30个大城市之一的马尼萨市中心进行的。在23名参与者中,18名是在肿瘤学领域工作的医疗保健专业人员,5名参与者是因癌症晚期失去亲人的主要照顾者。照顾者家庭成员是指在家中以自己的方式照顾晚期癌症患者并陪伴患者治疗过程的家庭成员,因为没有临终关怀。深度访谈采用半结构化访谈指南。数据由研究人员转录并在MAXQDA 2020中编码,进行主题分析,并划分为意义单位。在研究的最后阶段,对意义单位进行了组合,揭示了四个基本主题:死亡偏好环境的概念化,医院死亡引起的问题,临终关怀的必要性,以及照顾者的临终关怀。研究结果表明,在土耳其,临终关怀是一项基本需求,医院的工作量将减少,医院资源可以有效地利用临终关怀的存在。与此同时,据了解,临终关怀是使晚期癌症患者及其护理人员更容易以平静的期望面对死亡的服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey.

In the context of end-of-life practices in Turkey, the researchers considered it important to reveal the need for hospice care in Turkey since the number of palliative care units is low and they do not meet the needs, hospice care services are absent, and intensive care units are misused in parallel with these deficiencies. The researchers addressed the subject with a phenomenological qualitative approach. The views of healthcare professionals and patient relatives who cared for terminal cancer patients. In the context of the environment of death preferences were of interest. The study was conducted in the city center of Manisa, one of the 30 metropolitan cities located in the western region of Turkey. Of the 23 participants, 18 were healthcare professionals working in the field of oncology, and five participants were primary caregivers who lost their loved ones with terminal cancer. The caregiver family members were the family members who provided care to the terminal cancer patient with their own means at home and accompanied the patient's treatment process, since there was no hospice care. A semi-structured interview guide was utilized for the in-depth interviews. Data were transcribed by the researchers and coded in MAXQDA 2020, subjected to thematic analysis, and divided into units of meaning. At the final stage of the study, the units of meaning were combined, and four basic themes were revealed: the conceptualization of the environment of death preferences, the problems caused by death in the hospital, the necessity of hospice care, and hospice care for caregivers. The study results demonstrated that hospice care was an essential need in Turkey, and the workload of hospitals would decrease, and hospital resources could be used efficiently in the presence of hospices. At the same time, it was understood that hospices were services making it easier for terminal cancer patients and their caregivers to face death with peaceful expectations.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
2.60
自引率
12.50%
发文量
28
期刊介绍: The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.
期刊最新文献
Chains. A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers. How Tangible is an Advance Care Planning Document in Reality? Still Ship at Sea. Disbelief, Distress, & Distrust: Trending Institution Related Emotional Distress During COVID-19.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1