非洲基因组学研究中的认知公正、非洲价值观和结果反馈。

Q1 Arts and Humanities Global Bioethics Pub Date : 2022-01-01 DOI:10.1080/11287462.2022.2124019
Cornelius Ewuoso, Ambroise Wonkam, Jantina de Vries
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引用次数: 2

摘要

这篇文章借鉴了非洲哲学中基于重要价值观——团结、偏袒和友好——的关键规范原则,对非洲基因组学研究中归还个人基因研究成果所面临的伦理挑战进行了批判性和深入的思考。确切地说,我们建议,团结、偏袒和友好的规范含义是,返回的调查结果应被视为对参与者的一种善意姿态,因为它构成了为他们的福祉采取行动。具体地说,友好的价值可能意味着,即使参与者对反馈的偏好是未知的,也应该向他们返回可操作的结果。尽管如此,返回个人基因结果将有成本的含义。在非洲基因组学研究项目的背景下,反馈的成本是相关的,这些项目通常由国际赞助者资助,应该进一步研究。
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Epistemic justice, African values and feedback of findings in African genomics research.

This article draws on key normative principles grounded in important values - solidarity, partiality and friendliness - in African philosophy to think critically and deeply about the ethical challenges around returning individual genetic research findings in African genomics research. Precisely, we propose that the normative implication of solidarity, partiality and friendliness is that returning findings should be considered as a gesture of goodwill to participants to the extent that it constitutes acting for their well-being. Concretely, the value of friendliness may imply that one ought to return actionable results to participants even when their preferences regarding feedback are unknown. Notwithstanding, returning individual genetic results will have a cost implication. The cost of feeding back is relevant in the context of African genomics research projects, which are often funded by international sponsors and should be researched further.

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来源期刊
Global Bioethics
Global Bioethics Arts and Humanities-Philosophy
CiteScore
5.00
自引率
0.00%
发文量
12
审稿时长
37 weeks
期刊最新文献
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