癌症儿童的精神健康及其相关因素。

IF 1 4区 医学 Q3 NURSING Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2023-11-01 Epub Date: 2023-06-12 DOI:10.1177/27527530231168592
Erika Juškauskienė, Olga Riklikienė, John Fisher
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引用次数: 0

摘要

导言:有具体的差距,呼吁在12岁及以下的儿童与癌症的精神福祉经验的实证研究。了解这些关系有助于在儿科肿瘤病房发展整体和以家庭为中心的护理。这项研究评估了癌症儿童的精神健康与他们的总体幸福感、幸福感、生活质量、疼痛强度和个人特征之间的关系。方法:于2020年6月至2021年11月在立陶宛收集数据。在儿童肿瘤血液学中心住院的癌症儿童(N = 81)参与了这项研究。纳入标准为年龄(5 - 12岁)、首次诊断为肿瘤疾病、无其他慢性疾病。使用的工具是:感觉良好,生活;牛津幸福问卷简表;幸福指数;PedsQL™3.0癌症模块和Wong-Baker FACES®疼痛评定量表。结果:儿童肿瘤患者在公共和个人领域的精神幸福感得分最高,而在超越领域的两个维度得分最低。年龄、受教育程度和家庭构成对儿童的精神健康、快乐和幸福感有显著影响,而参加教会活动对儿童的整体精神健康及其在生活经验维度上的超越领域有显著影响。快乐对精神健康的四个方面都有最强的影响。讨论:孩子们强调精神方面的重要性,在更大程度上感觉比他们在生活中所经历的要好。尽管孩子们年纪还小,但他们熟悉家庭传统,即宗教习俗和去教堂做礼拜,并在特定的社会文化背景下遵循这些传统。
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Spiritual Well-Being and Related Factors in Children With Cancer.

Introduction: There are specific gaps that call for empirical research in the experiences of spiritual well-being among children 12 years old and younger with cancer. Understanding these relationships can help to develop holistic and family centered care in pediatric oncology wards. This study assessed the spiritual well-being of children with cancer in association with their general well-being, happiness, quality of life, pain intensity, and personal characteristics. Method: The data were collected in Lithuania between June 2020 and November 2021. Children with cancer (N = 81) who were hospitalized at pediatric oncology-hematology centers participated in the study. Inclusion criteria were age (from 5 to 12 years old), diagnosis of oncologic disease for the first time, and absence of other chronic diseases. The instruments used were: Feeling Good, Living Life; Oxford Happiness Questionnaire, Short Form; Well-Being Index; PedsQL™3.0 Cancer Module, and a Wong-Baker FACES® Pain Rating Scale. Results: Communal and personal domains of spiritual well-being had the highest scores among pediatric oncology patients while both dimensions of the transcendental domain scored lowest. Age, level of education, and family composition revealed differences in children's spiritual health, happiness, and well-being, and church attendance was significant for overall spiritual well-being and its transcendental domain on lived experience dimension. Happiness had the strongest effect on all four domains of spiritual well-being. Discussion: Children emphasized the importance of spiritual aspects to feel better to a greater extent than they experienced in their lives. Despite their young age, children were familiar with family traditions, that is, religious practice and church attendance, and followed them in a particular sociocultural context.

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