Genetics and Justice, Non-Ideal Theory and the Role of Patents: The Case of CRISPR-Cas9.

Oliver Feeney
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Abstract

There are ongoing concerns of social justice regarding inequalities in the distribution of access to potential genome editing technologies. Working within non-ideal theory, Colin Farrelly advances a justification for the use of patents to speed up the arrival of safe and effective interventions for all, including the socially disadvantaged. This paper argues that such success is less assured when one considers the actual functioning of patents and the practical implications of the patent system in the context of biotechnological innovations. I suggest that non-ideal theoretical approaches risk reverting back to a form of ideal theory if they simply refer to such real-world constraints - e.g. patents - but do not critically assess and fully examine how such constraints manifest themselves in practice. I highlight some considerations that would be important in order to develop and foster a more robust non-ideal approach to justice in biotechnological developments.

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遗传学与正义,非理想理论和专利的作用:以CRISPR-Cas9为例。
对于潜在基因组编辑技术的不平等分配,人们一直担心社会公正。在非理想理论的基础上,Colin Farrelly提出了利用专利加速为所有人(包括社会弱势群体)提供安全有效干预措施的理由。本文认为,当人们考虑到专利的实际功能和专利制度在生物技术创新背景下的实际影响时,这种成功就不那么有保证了。我认为,如果非理想理论方法只是简单地引用现实世界的约束条件(例如专利),但没有批判性地评估和充分检查这些约束条件在实践中是如何表现出来的,那么它们就有可能回归到理想理论的一种形式。我强调一些重要的考虑,以便在生物技术发展中发展和促进一种更有力的非理想的司法方法。
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来源期刊
CiteScore
0.90
自引率
0.00%
发文量
52
期刊介绍: The European Journal of Jewish Studies (EJJS) is the Journal of the European Association for Jewish Studies (EAJS). Its main purpose is to publish high-quality research articles, essays and shorter contributions on all aspects of Jewish Studies. Submissions are all double blind peer-reviewed. Additionally, EJJS seeks to inform its readers on current developments in Jewish Studies: it carries comprehensive review-essays on specific topics, trends and debated questions, as well as regular book-reviews. A further section carries reports on conferences, symposia, and descriptions of research projects in every area of Jewish Studies.
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