Suitability of quality of life outcome measures for children with severe cerebral palsy receiving postural care interventions: A scoping review.

Abstract

Children with Cerebral Palsy (CP) have complex conditions affecting their health which makes it challenging for assistive technology professionals to achieve desired intervention outcomes. Health professions examining quality of life (QOL) changes must use measurement tools capable of capturing intervention-related changes for the specified population. Investigators aimed to complete a scoping review of QOL-related postural care (PC) publications, identify QOL-based assessments and critically analyze their suitability in measuring intervention outcomes for children with non-ambulatory CP. Investigators searched articles published between 1998-2022 relevant to children with CP that addressed QOL-related: meanings/domains, outcome measures and clinical intervention outcomes. Investigators followed standardized published guidelines throughout each step of the scoping review process from search through data analysis. Subsequently, investigators used a published guideline for analyzing the PC outcome measures identified during the review process, examining their suitability for the target population. Results of this review will help care teams understand QOL and choose outcome assessments capable of measuring QOL-related intervention changes. Thus, making it possible for them to better serve children with severe CP.