Autism-Related Language Preferences of French-Speaking Autistic Adults: An Online Survey.

Philippine Geelhand, Fanny Papastamou, Marie Belenger, Elise Clin, Lydia Hickman, Connor T Keating, Sophie Sowden
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Abstract

Background: In recent years, there have been increasing discussions surrounding the appropriate terminology to talk about autism. Initially, this debate revolved around the use of person-first language (e.g., person with autism) versus identity-first language (IFL; e.g., autistic person) but has recently expanded to other autism-related terms (e.g., deficits). However, to date, studies investigating autism-related language preferences have been limited to English-speaking countries, and little is known about preferences in other languages. This study addresses this gap by investigating the language preferences of French-speaking autistic adults.

Methods: Five hundred and forty-one French-speaking autistic adults (formal diagnosis and self-identified) completed an online survey where they selected terms they preferred to use to talk about: (1) the nomenclature of autism; (2) an autistic person; (3) someone's autistic identity; (4) autism more broadly; (5) the abilities of autistic people; and (6) people without a diagnosis of autism. Participants also revealed more about their language preferences via an open-text response.

Results: The most preferred terms were "Autisme," "Personne autiste," "Autiste," "Est Autiste," "Différence neurologique/cérébrale," "Différences," "Difficultés," "Personne neurotypique," "Neurotypique," and "Personne non-autiste." To better understand these preferences, participants' open comments were analyzed, revealing further support for IFL and the social model of disability, and a preference for simple, precise, and validated terms.

Conclusions: These results are consistent with autism terminology preferences in English-speaking countries and provide additional insight into the reasons underlying these preferences. Such work has implications for informing the language of researchers, clinicians, and other professionals in the field, as well as the general public.

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讲法语的自闭症成年人与自闭症有关的语言偏好:在线调查。
背景:近年来,围绕谈论自闭症的适当术语的讨论越来越多。最初,这一争论围绕着使用以人为先的语言(如自闭症患者)与以身份为先的语言(IFL;如自闭症患者),但最近又扩展到其他与自闭症相关的术语(如缺陷)。然而,迄今为止,调查自闭症相关语言偏好的研究仅限于英语国家,对其他语言的偏好知之甚少。本研究通过调查讲法语的成年自闭症患者的语言偏好,弥补了这一空白:五百四十一名讲法语的成人自闭症患者(正式诊断和自我认同)完成了一项在线调查,他们在调查中选择了他们更愿意用来谈论的术语:(1)自闭症的命名;(2)自闭症患者;(3)自闭症患者的身份;(4)更广泛的自闭症;(5)自闭症患者的能力;以及(6)未被诊断为自闭症的人。参与者还通过开放式文本回复透露了他们更多的语言偏好:最受欢迎的词语是 "Autisme"、"Personne autiste"、"Autiste"、"Est Autiste"、"Différence neurologique/cérébrale"、"Différences"、"Difficultés"、"Personne neurotypique"、"Neurotypique "和 "Personne non-autiste"。为了更好地理解这些偏好,我们对参与者的公开评论进行了分析,发现他们进一步支持 IFL 和残疾的社会模式,并偏好简单、准确和经过验证的术语:这些结果与英语国家的自闭症术语偏好一致,并为了解这些偏好的原因提供了新的视角。这些工作对研究人员、临床医生、该领域的其他专业人员以及普通公众的用语具有借鉴意义。
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