Patients' and Caregivers' Preferences for Mental Health Care and Support in Atopic Dermatitis.

IF 4 3区医学 Q1 DERMATOLOGY Dermatitis Pub Date : 2024-01-01 Epub Date: 2023-08-09 DOI:10.1089/derm.2023.0111

Albert C Chong, Alan Schwartz, Jessica Lang, Peck Y Ong, Ian A Myles, Jonathan I Silverberg, Korey Capozza

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Abstract

Background: Atopic dermatitis (AD) has large mental health impacts for patients and caregivers, yet their preferences regarding how to relieve these impacts are poorly understood. Objective: To understand patients' and caregivers' preferences for AD-related mental health care and support. Methods: We surveyed 279 adult AD patients and 154 caregivers of children with AD across 26 countries regarding their AD-related mental health burden, preferred strategies for improving AD-related mental health, and experiences with mental health care in AD. Results: Caregivers reported significantly worse overall mental health (P = 0.01) and anxiety (P = 0.03) than adult patients when controlling for AD severity. Among adult patients, 58% selected treating the AD, 51% managing itch, 44% wearing clothing to cover up skin, 43% avoiding social situations, and 41% spending time alone, as strategies they felt would improve their own AD-related mental health. Caregivers selected managing itch and treating the AD most frequently for both their own (76% and 75%, respectively) and their children's (75% and 61%) mental health. Adult patients were less satisfied with mental health care from mental health providers versus nonmental health providers (P < 0.001). Conclusions: Effective AD management is the preferred method for improving mental health among patients as well as caregivers, who may experience the greatest mental health impacts. Self-care strategies should be considered in a shared decision-making approach.

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特应性皮炎患者和护理人员对心理健康护理和支持的偏好。

背景：特应性皮炎（AD）对患者和护理人员的心理健康有很大影响，但他们对如何缓解这些影响的偏好却知之甚少。目的：了解患者和护理人员对减轻特应性皮炎影响的偏好：了解患者和护理者对与特应性皮炎相关的心理健康护理和支持的偏好。方法：我们对 279 名成年注意力缺失症患者进行了调查：我们对 26 个国家的 279 名成人注意力缺失症患者和 154 名儿童注意力缺失症患者的照顾者进行了调查，内容涉及他们与注意力缺失症相关的心理健康负担、改善注意力缺失症相关心理健康的首选策略以及注意力缺失症心理健康护理的经验。结果：在控制注意力缺失症严重程度的情况下，照护者报告的总体心理健康状况（P = 0.01）和焦虑程度（P = 0.03）明显差于成年患者。在成年患者中，58%的人选择治疗注意力缺失症，51%的人选择控制瘙痒，44%的人选择穿衣服遮盖皮肤，43%的人选择避免社交场合，41%的人选择独处，他们认为这些策略可以改善自己与注意力缺失症相关的心理健康。照顾者最常选择的改善自身（分别为 76% 和 75%）和子女（分别为 75% 和 61%）心理健康的方法是止痒和治疗注意力缺失症。成年患者对心理健康服务提供者提供的心理健康护理的满意度低于非心理健康服务提供者（P 结论：对心理健康服务提供者提供的心理健康护理的满意度低于非心理健康服务提供者（P 结论）：有效的注意力缺失管理是改善患者和照护者心理健康的首选方法，他们的心理健康可能会受到最大的影响。在共同决策方法中，应考虑自我护理策略。

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来源期刊

Dermatitis 医学-皮肤病学

CiteScore

5.30

自引率

11.50%

发文量

251

审稿时长

>12 weeks

期刊介绍： Dermatitis is owned by the American Contact Dermatitis Society and is the home journal of 4 other organizations, namely Societa Italiana di Dermatologica Allergologica Professionale e Ambientale, Experimental Contact Dermatitis Research Group, International Contact Dermatitis Research Group, and North American Contact Dermatitis Group. Dermatitis focuses on contact, atopic, occupational, and drug dermatitis, and welcomes manuscript submissions in these fields, with emphasis on reviews, studies, reports, and letters. Annual sections include Contact Allergen of the Year and Contact Allergen Alternatives, for which papers are chosen or invited by the respective section editor. Other sections unique to the journal are Pearls & Zebras, Product Allergen Watch, and news, features, or meeting abstracts from participating organizations.